Making Sense of Multiple Diagnoses
Making Sense of Multiple Diagnoses By Brenda Finucane When it comes to diagnosing Fragile X syndrome (FXS), there is good news and bad news. The good news is that more children than ever are [...]
Clinical Trial RECONNECT: ZYN002 Gel
This study will evaluate the efficacy and safety of ZYN002, a clear gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).
Study: Memory Game in Children with FXS
A study to learn about memory and memory development in children with Fragile X syndrome.
NFXF Webinar: Fragile X Syndrome
Here is your recording of the NFXF webinar: Fragile X Syndrome. Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS) - everything from brief descriptions of the Fragile X-associated disorders, such as [...]
Medications for Fragile X Syndrome
Dr. Craig Erickson answers listener questions on medications for Fragile X syndrome.
Medication for Individuals with Fragile X Syndrome
Here is your recording of Medication for Individuals with Fragile X Syndrome. Many thanks to Dr. Craig Erickson for his 8th free webinar on the ever-popular subject of medication for individuals living with Fragile [...]
Planning Your Visit to a Fragile X Clinic
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many [...]
Home Schooling and Fragile X
Whether you have decided to home school your child for a year or for an extended period, developing a curriculum can be a challenge. Start by setting goals for your child, research and experiment [...]
Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)
NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]
Lesson Planning Guide
Download the Lesson Planning Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help [...]
Vanderbilt: Fragile X/Angelman Syndrome Study
Vanderbilt University Medical Center [mpc_image image="28431" padding_divider="true" padding_css="padding-bottom:20px;" image_opacity="100" image_inner_border_gap="0" effect="none" image_hover_opacity="100"] Do you have an adolescent child diagnosed with Fragile X syndrome or Angelman syndrome? We Need: Either two females, or [...]
Managing Difficult Back-to-School Transitions for Students With Fragile X Syndrome
Several strategies can help in guiding a successful transition. Though if the student changes schools, neighborhoods, or programs, additional support is required.
Summary of Guidelines for Establishing a Private Home
Some families may not want their child to live in a home/facility that is offered by the local disability organization.
Doggone It … Mantras Are Great for Learning!
Mantras, like positive affirmations, really do have power. Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus on thinking and action.
A Holistic Approach to Toilet Training
The challenges of toilet training can be magnified for families of children with Fragile X syndrome. It's not simply that toilet training is delayed, it often requires specific behavioral techniques that address their physical and behavioral phenotypes.