Fragile X Syndrome

/Tag:Fragile X Syndrome

2019 Fragile X and Autism Educational Conference

A one day conference featuring our guest speaker, Dr. Marcia Braden, Ph.D., P.C. Marcia L. Braden is a licensed psychologist, with a clinical practice specializing in children and adolescents. She is a former teacher with [...]

By | 2019-07-01T13:08:00+00:00 Aug 17, 2019|Comments Off on 2019 Fragile X and Autism Educational Conference

2019 Fragile X Family Research Conference

20 travel scholarships, at $250 each, are now available! Listen to Dr. Erickson's announcement and email fragilex@cchmc.org for information. Come ready to learn more about research from FX experts and mingle with families just like [...]

By | 2019-07-10T11:31:53+00:00 Jul 20, 2019|Comments Off on 2019 Fragile X Family Research Conference

8 Tips on Transitioning Your Child to Adult Services

Parents and other caregivers must consider many factors as young people with Fragile X syndrome approach the transition from high school to adulthood. Here we present eight tips based on research from Morgridge College of Education at the University of Denver.

By | 2018-12-19T12:30:01+00:00 Dec 5, 2018|Treatment and Intervention|Comments Off on 8 Tips on Transitioning Your Child to Adult Services

Fragile X 5K & 8th Annual Awareness Walk

Fragile X Syndrome is the most common inherited cause of mental impairment. Join us for our 8th Annual Fragile X Awareness Walk along with our Inaugural Chip Timed 5K Race. Awards: Overall Male/Female Award 1st, [...]

By | 2018-09-19T11:30:07+00:00 Nov 3, 2018|Comments Off on Fragile X 5K & 8th Annual Awareness Walk

North Carolina Fragile X Awareness Bowl-a-Thon

It is time for our Annual N.C. Fragile X Bowl-a-Thon! Bowlers, start collecting your pledges! Let friends, family, and your fans know that you are helping raise money for the NC Fragile X Community Support [...]

By | 2018-06-13T10:55:26+00:00 Jul 22, 2018|Comments Off on North Carolina Fragile X Awareness Bowl-a-Thon

IA and SD: Bike To X Out Fragile X

The National Fragile X Foundation Heartland Chapter – Iowa and South Dakota is hosting the 3rd Annual Bike To X Out Fragile X ride. This is a 56-mile bicycle ride with all proceeds benefiting The [...]

By | 2018-03-20T12:27:31+00:00 Jun 2, 2018|Comments Off on IA and SD: Bike To X Out Fragile X

6th Annual New Directions in Fragile X Conference

Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working [...]

By | 2017-11-07T11:27:20+00:00 Nov 18, 2017|Comments Off on 6th Annual New Directions in Fragile X Conference

Webinar: Autism Spectrum Disorder in Fragile X Syndrome

ASD in FXS; Co-Occurring Conditions and Current Treatment Featuring Special Guest Walter E. Kaufmann, MD, Greenwood Genetic Center, Boston Children’s Hospital Description Numerous small and parent reported studies have shown that a considerable percentage of [...]

By | 2017-09-15T15:43:46+00:00 Sep 28, 2017|Comments Off on Webinar: Autism Spectrum Disorder in Fragile X Syndrome

Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]

By | 2017-09-21T11:49:53+00:00 Aug 31, 2017|Opportunities for families|Comments Off on Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)
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