Fragile X Syndrome

/Tag:Fragile X Syndrome

Empowering Families Impacted by Fragile X Syndrome

Carrier Related Issues: Learning How to Self-Regulate to Support Your Child This conference is designed specifically for Fragile X carriers and their partners to learn how Fragile X may impact individuals and their families. The information [...]

By | 2019-10-01T15:24:57+00:00 Nov 9, 2019|Comments Off on Empowering Families Impacted by Fragile X Syndrome

8 Tips on Transitioning Your Child to Adult Services

Parents and other caregivers must consider many factors as young people with Fragile X syndrome approach the transition from high school to adulthood. Here we present eight tips based on research from Morgridge College of Education at the University of Denver.

By | 2018-12-19T12:30:01+00:00 Dec 5, 2018|Treatment and Intervention|Comments Off on 8 Tips on Transitioning Your Child to Adult Services

Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]

By | 2017-09-21T11:49:53+00:00 Aug 31, 2017|Opportunities for families|Comments Off on Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

Back to School Without a Bang

Several strategies can help in guiding a successful transition. If the student is going back to the same school with the same teaching staff, the transition process is easier and requires less support. When the student changes schools, neighborhoods, or programs, additional support is required.

By | 2017-08-17T17:12:17+00:00 Jun 2, 2017|Behavior, Braden on Behavior|Comments Off on Back to School Without a Bang

Webinar: Strategies for Females with Fragile X

This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.

By | 2017-08-17T17:26:25+00:00 May 22, 2017|Upcoming Webinar|Comments Off on Webinar: Strategies for Females with Fragile X

Doggone It…Mantras Are Great for Learning!

Mantras, like positive affirmations, really do have power. In our case, we have found mantras to be useful for both skill development and to support self-regulation. So what are mantras? Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus thinking and action.

By | 2017-08-17T17:29:16+00:00 Apr 19, 2017|Behavior, Coffee Talk with Mouse and Tracy|Comments Off on Doggone It…Mantras Are Great for Learning!

A Holistic Approach to Toilet Training

Toilet training can be a difficult and challenging experience for children and parents alike, and the challenges can be magnified for families of children with Fragile X syndrome (FXS). It is not simply that toilet training is delayed for these individuals, but it often requires specific behavioral techniques that address the physical and behavioral phenotype of children with FXS.

By | 2019-07-26T17:39:08+00:00 Mar 29, 2017|Behavior, Treatment and Intervention|Comments Off on A Holistic Approach to Toilet Training
Load More Posts