Fragile X Syndrome

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Empowering Families Impacted by Fragile X Syndrome

Carrier Related Issues: Learning How to Self-Regulate to Support Your Child This conference is designed specifically for Fragile X carriers and their partners to learn how Fragile X may impact individuals and their families. The information [...]

By | 2019-10-01T15:24:57+00:00 Nov 9, 2019|Comments Off on Empowering Families Impacted by Fragile X Syndrome

2019 Fragile X and Autism Educational Conference

A one day conference featuring our guest speaker, Dr. Marcia Braden, Ph.D., P.C. Marcia L. Braden is a licensed psychologist, with a clinical practice specializing in children and adolescents. She is a former teacher with [...]

By | 2019-07-01T13:08:00+00:00 Aug 17, 2019|Comments Off on 2019 Fragile X and Autism Educational Conference

2019 Fragile X Family Research Conference

UPDATE - LIVESTREAM The plan is to offer a livestream of the event. If all goes well, you can view the event online with the below links. 9:00AM-12:00 PM streaming link https://cchmcstream.cchmc.org/MediasiteEX/Play/56e60d779d7e4723b8975daa0c4067151d 1:00 PM-4:00 PM [...]

By | 2019-07-19T16:13:08+00:00 Jul 20, 2019|Comments Off on 2019 Fragile X Family Research Conference

8 Tips on Transitioning Your Child to Adult Services

Parents and other caregivers must consider many factors as young people with Fragile X syndrome approach the transition from high school to adulthood. Here we present eight tips based on research from Morgridge College of Education at the University of Denver.

By | 2018-12-19T12:30:01+00:00 Dec 5, 2018|Treatment and Intervention|Comments Off on 8 Tips on Transitioning Your Child to Adult Services

Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is [...]

By | 2017-09-21T11:49:53+00:00 Aug 31, 2017|Opportunities for families|Comments Off on Clinical Trial: AFQ056 for Language Learning in Children with Fragile X Syndrome (NN107)

Back to School Without a Bang

Several strategies can help in guiding a successful transition. If the student is going back to the same school with the same teaching staff, the transition process is easier and requires less support. When the student changes schools, neighborhoods, or programs, additional support is required.

By | 2017-08-17T17:12:17+00:00 Jun 2, 2017|Behavior, Braden on Behavior|Comments Off on Back to School Without a Bang

Webinar: Strategies for Females with Fragile X

This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.

By | 2017-08-17T17:26:25+00:00 May 22, 2017|Upcoming Webinar|Comments Off on Webinar: Strategies for Females with Fragile X
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