The National Fragile X Foundation Heartland Chapter – Iowa and South Dakota is hosting the 3rd Annual Bike To X Out Fragile X ride. This is a 56-mile bicycle ride with all proceeds benefiting The National Fragile X Foundation, Heartland Chapter – Iowa and South Dakota. Registration and packet pickup: 7: 30am-8:30 am at the
Our children are growing up quickly and it is never too early to plan for major life transitions and life after school. The Fragile X Resource Center of Missouri will host a workshop for families of children with Fragile X syndrome to help them plan for this important transition. Topics included: ABLE Accounts Special Needs
Targeting Social Skills and Behavioral Strategies for Home, School, and Work Featuring Dr. Jennifer Epstein Dr. Jennifer Epstein is a licensed clinical psychologist and health service provider with more than 20 years of experience working with children and families. She received her Psy.D. in Clinical Psychology from Wright State University. Addition to traditional child psychology
ASD in FXS; Co-Occurring Conditions and Current Treatment Featuring Special Guest Walter E. Kaufmann, MD, Greenwood Genetic Center, Boston Children’s Hospital Description Numerous small and parent reported studies have shown that a considerable percentage of individuals with FXS also carry a diagnosis of autism spectrum disorder (ASD). Individuals with a dual diagnosis of FXS and
Why should you visit a Fragile X clinic? Because you won’t hear, “Fragile what?” You will have the opportunity to meet with a team of people who will be able to provide guidance in many areas of raising your child or children. Just as importantly, once you establish a relationship with the Fragile X doctor,
Whether you have decided to home school your child for a year or for an extended period, developing a curriculum can be a challenge. Start by setting goals for your child, research and experiment with ways your child learns, review various curriculums, and put together a program for your child. Here are websites to get
NN107 FX-LEARN is currently looking to enroll children with Fragile X Syndrome (FXS) for a research study conducted by the Network for Excellence in Neuroscience Clinical Trials (NeuroNEXT). Dr. Elizabeth Berry-Kravis at Rush University is the Protocol Principal Investigator and is leading this national study. The National Institute of Neurological Disorders and Stroke (NINDS), a
Download the Guide A Practical Approach for the Classroom This guide is intended for classroom teachers who may have little or no exposure to Fragile X syndrome (FXS). Our goal is to help make the teaching and learning environment from preschool through high school more effective, more efficient, and more rewarding for teachers and the
This announcement has been posted as a courtesy by the National Fragile X Foundation (NFXF) on behalf of Vanderbilt University Medical Center. The announcement and the parties conducting and sponsoring the research meet guidelines established by the NFXF regarding relevancy and appropriateness to Fragile X. The NFXF takes no position and makes no claims as
Several strategies can help in guiding a successful transition. If the student is going back to the same school with the same teaching staff, the transition process is easier and requires less support. When the student changes schools, neighborhoods, or programs, additional support is required.
Your son or daughter is moving out! Is it a parent’s dream? For many, yes, but… You have given your child your best of everything for his whole life. You have given your attention, you have figured out ways to teach him or her and you have created the best IEPs you possibly could. You’ve
This presentation will provide an overview of executive functioning skills and deficits. There will be a discussion of how EF deficits affect schoolwork, social skills and daily living skills. The emphasis will be on describing and selecting practical strategies to teach school-aged girls with fragile X who have executive functioning deficits.
Some families may not want their child to live in a home/facility that is offered by the local disability organization.