Teaching Your Child to Ask for Something
One of the most challenging things for my son, Ian, to do is ask another person (not mom or dad) for something — like a favor or request — in an appropriate way. This [...]
Behavior and Fragile X Syndrome
When discussing FXS and behavior, the focus should be on the whole person. Some behaviors may be a result of the condition, of which many are positive.
How an Adaptive Physical Education Class Should Be “Run”
An adaptive physical education class like this one set up in your school would be a wonderful program that every student could benefit from.
“Happy Birthday” Meltdowns and Other Behavioral Conundrums
“Why does my child cry when people sing ‘Happy Birthday’ to her?” Many years ago when I first heard this from a parent of a girl with FXS, I thought it was rather strange and perhaps something unique to this child’s behavioral repertoire.
Insight on Evidence-based Medical and Therapeutic Intervention
A discussion for parents of children with special developmental needs about evidence, consensus and anecdotal-based interventions.
The Value of a Detailed School Schedule
The Value of a Detailed School Schedule By Jayne Dixon Weber During the COVID-19 response, school schedules may look at little different everywhere, but we want to provide ideas that you can use at [...]
My Child Won’t Answer Questions!
Direct questions are typically the way we try to engage people in conversation. For children with FXS, we need to learn other strategies. It is critical to understand why it is so difficult for children with FXS to understand and respond to these questions, before we get to the how of getting answers.
Behavior Modification in the Classroom
Watching a student with FXS struggle is difficult when their behavior is affected by those characteristics that make up the Fragile X phenotype.
How to Encourage Play — and Why Itʼs So Critical for Your Child
One of the common sites we encounter when visiting a child's home is a play area chock-full of every toy known to man, yet they won’t play with any of them. This exasperation is likely familiar to many of you.
Reading, Writing, and Behavior?
Best practice for those affected with FXS means providing a learning environment that allows them to access the curriculum in ways that minimize their disruptive behaviors.