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How you can get involved in Fragile X research, featuring Elizabeth Berry-Kravis, Craig A. Erickson, Randi J. Hagerman, David Hessl, Tracy King, Angel Wang, Jean Luan McColl, Laurie Bridges, Kara Frech, Emily Mack, Amie Milunovich, and Missy Zolecki, and moderated by Hilary Rosselot.
This family-friendly presentation focuses on considerations for school-age children with Fragile X syndrome. Presented by Kerrie Lemons Chitwood, Laura Greiss Hess, and Anne Hoffmann.
Learn how to navigate medication strategies and approaches for children with FXS. Presented by Karen Regan, RN, and Nicole Tartaglia, MD.
The always popular Bike To X Out Fragile X fundraising event draws almost 70 riders for a unique bike ride through Des Moines and Waukee, Iowa. Learn more about their day.
Consensus of the Fragile X Clinical & Research Consortium Seizures in Fragile X Syndrome Reading Time: 51 min.—|—Last Updated: April 2022—|—First Published: June 2011—|—Download PDF General Seizure Information: [...]
Fragile X Info Series Introduction to Assessing Individuals With FXS In this summary we cover principles, strategies, limitations, and accommodations. ENGLISH SPANISH [...]
Jayne Dixon Weber and Dr. Craig Erickson discuss new medications and review existing medications used for various issues related to Fragile X syndrome.
Randi J. Hagerman Summer Scholars Research Awards The Randi J. Hagerman Summer Scholar Research Awards will fund one or more summer students’ research at $2,500 each. Student work can be focused on Fragile [...]
Corey Gershenson lives with Fragile X syndrome. Thanks to his determination — and employers willing to embrace employees with disabilities — he also works two jobs and volunteers at Mercy Hospital in St. Louis.
