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Consensus of the Fragile X Clinical & Research Consortium Medications for Individuals with Fragile X Syndrome Reading Time: 190 min.—|—Last Updated: Feb. 2021—|—First Published: 2012—|—English PDF—|—Spanish PDF The [...]
Get Your Free eBook! Adults with Fragile X Syndrome: Making a Better Tomorrow From the Transition to Adult Services to Thriving in the Adult World We’ve built the ultimate guide to transitioning into and [...]
Our Vision, Mission and Priorities Fragile X syndrome is the most common inherited intellectual and developmental disability. Up to 1.5 million Americans have the gene premutation, and up to 100,000 Americans have [...]
Fragile X Info Series Adult Living — Transportation Here we cover various transportation options for your adult child with Fragile X syndrome, and some tips on easing them into [...]
Fragile X is complex, and it can be challenging to explain. That's why we developed a set of facts you can use as talking points for Fragile X Awareness Month!
Fragile X Info Series Adult Living — Volunteering, Day Programs & Employment When looking into life after high school for your young adult, it’s important to include regular daily [...]
Helpful tips and insight into various housing options, sources of funding, and points to consider before your young adult's big move.
Fragile X Info Series Adult Housing A starter guide for after high school and after IDEA services end at age 21, and adult living decisions need to be made [...]
Assessment of Fragile X Syndrome for Clinicians Detailed Recommendations for Clinicians, Providers and Other Professionals Authors: David Hessl, Lisa Cordeiro, Adrienne Villagomez, Elizabeth Coan, Leonard Abbeduto, Anne Hoffman, Angela John Thurman, and Lauren Schmitt [...]
Here is your recording of the NFXF webinar: Fragile X Syndrome. Dr. Nicole Tartaglia joins us to discuss Fragile X syndrome (FXS) - everything from brief descriptions of the Fragile X-associated disorders, such as [...]
