The Transition Program While Still in School
This is generally the program for those 18 through 21 years of age, though some states/school districts offer services for longer. These programs vary widely on what they offer, so be sure to look into how your school district functions.
When School Services End
Set a Daily Schedule
Regardless of what you’re able to set up when school services end, set a daily schedule for the person right away, even if it’s a general one. You can always add to it or revise it later. A visual schedule will help both of you — it sets expectations, and it gives the individual structure, routine, and knowledge of what will happen each day. As much as possible, be sure to include leaving the house every day, as many individuals can get too used to staying at home and not want to leave. Include the individual in setting the schedule.
Volunteer jobs can offer the type of work that is not found anywhere else. Working at the Humane Society? In a senior center? These can be very rewarding jobs. Volunteers are an important part of many organizations, and in many cases, they are invaluable! Companies/people who hire volunteers count on them just as in a paying job. Volunteering is a commitment, and it’s important for the individual to look at it that way.
To find the options in the area where the family lives, reach out to the local disability organization, the local Arc, or other parents who live in the area. It’s important that parents visit any programs they are considering.
Seek employment for the person with FXS if they are able to work part or full time. It’s not unusual for parents to find the job for their adult child, but there are also resources to help find the job — and a job coach — if needed.