We’ve built the ultimate guide to transitioning into and continuing to care for adults with Fragile X syndrome. Our free ebook helps you — parents and caregivers — make a better tomorrow for adults with Fragile X syndrome. They deserve it!
As with all of our digital resources, this is provided free of charge, because the ability to pay shouldn’t stand in the way of giving help and hope to those living with Fragile X.
1. Transition to Adult Services
IDEA • waitlists • SSI • health insurance • transitioning to a doctor who sees adults • Medicaid waivers • the ABLE act • guardianship and other alternatives • DMV-issued photo identification • registering for Selective Service • registering to vote • financial planning • post-secondary education • and more.
Thoughts to consider • consider a tracking app • transportation options • driving • paratransit • walking • teaching walking to work independently • riding a bike or bus independently • Uber or Lyft • subway/light rail/Amtrak and other mass transit systems • airplane travel ideas and resources • extended car trip and travel ideas • and more.
When and where to start • sources of funding • types of housing options • Section 8 vouchers • independent living • establishing a private home • living settings checklist • sample care provider interview questions • parent stories • resources • and more.
4. Employment, Volunteering & Day Programs
Transition program during high school • when school services end • finding a job • building on strengths and interests • interview form and checklist • developing appropriate work attributes • modifying the work environment • parent stories • nationwide, state, and local employment opportunities resources • sample resume • and more.
5. College for Individuals with Fragile X Syndrome
Think College • when school services end • transition and employment • inclusive postsecondary education • the ADA Section 504 and postsecondary education • 6 inclusive college programs • helping students with intellectual disabilities conquer college • programs • inclusive higher education • 20 colleges with great inclusion programs • Association of University Centers on Disabilities • evaluating postsecondary education programs • educational options after high school • postsecondary education opportunities for students with autism • financial aid • scholarships • stories and advice from families • and more.
6. Daily Living
Daily schedule • staying healthy • hygiene • doctor visits • social development • behavior • medication • parent stories • and more.
Note: We had previously listed eight chapters, but instead have reorganized the information. It’s all here!