The transition from adolescence to adulthood can be challenging for many reasons. There are many new issues to address as those with Fragile X syndrome become an adult, and the information below should help when planning for that transition.
Overview of IDEA
The Individuals with Disabilities Education Act (IDEA)↗ is legislation ensuring eligible, disabled students are provided with whatʼs called Free Appropriate Public Education↗, which is tailored to their individual needs through age 21 (there are some variations in each state).
As the person with FXS leaves high school and attends transition services typically included for ages 18–21 (or the age in your state), the next move is into adult services. It is important to realize that the services under IDEA come to an end. There is currently no equivalent law that guarantees adult services after IDEA.
It is also important to note that after your young adult leaves high school, it’s up to parents/care providers to set up their day — 24/7 that is, 24 hours a day, seven days a week.
Here are suggested contacts to find more information in your state about adult services: