The Colombia Project of Hope
The NFXF and UC Davis MIND Institute investigate the high number of people in Ricaurte, Colombia, with intellectual disabilities. An amazing story.
15
04, 2016
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8
10, 2015
2015 Community Support Network Awards
The Awards began in 2014 as a way to recognize the incredible work and dedication of our CSN groups and leaders. There are four categories: Most Innovative Event Up & Comers of the [...]
3
06, 2015
Behavior and Fragile X Syndrome
When discussing FXS and behavior, the focus should be on the whole person. Some behaviors may be a result of the condition, of which many are positive.
9
10, 2014
Comparison of Financial & Employment Impacts of FXS, Autism & ID
A study summary of: A Comparison of Family Financial and Employment Impacts of Fragile X Syndrome, Autism Spectrum Disorders, and Intellectual Disability The full study is available in Research and Developmental Disabilities, July 2014. The [...]
4
08, 2014
The NFXF Responds to Harrisburg Loss
The National Fragile X Foundation is saddened to learn of the death of Jarrod Tutko Jr., an 8-year-old boy from Harrisburg, Penn., who was living with Fragile X syndrome. The Fragile X community mourns the [...]
20
03, 2014
Understanding the Fragile X Learning Style for Better Results
We often remind fellow interventionists and educators time and time again about the many unique aspects of Fragile X syndrome as well as the resources available online and in print.
27
08, 2013
The Value of a Detailed School Schedule
The Value of a Detailed School Schedule By Jayne Dixon Weber During the COVID-19 response, school schedules may look at little different everywhere, but we want to provide ideas that you can use at [...]
8
05, 2013
Help shape federal agency strategies for youth and young adults with disabilities
Join the Conversation for Change: Help shape federal agency strategies for helping youth and young adults with disabilities successfully transition from school to work Overview To examine the impact of existing federal regulations and legislation [...]
22
02, 2013
Congressman Harper Re-Introduces the TEAM Act
The three bills which comprised the TEAM Act began and finished the 112th Congress without ever making it to a vote. The package of bills serve the dual function of promoting the training and employment [...]
29
06, 2012
Strategies for Day-to-Day Life
Mouse and Tracy present day-to-day strategies they've drawn from their evidenced-based practice and knowledge of the neurocognitive development of children with Fragile X syndrome.