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Here are your recordings of the NFXF webinars: COVID-19 Vaccines and Fragile X and Dr. Erickson Answers Medication Questions Many thanks to Dr. Craig Erickson for his webinar on the timely topic of vaccinations [...]
Fragile X Info Series Your In-Person Visit to a Fragile X Clinic A comprehensive guide and checklists on how to prepare, what to expect, questions to ask, and [...]
Fragile X Info Series A New Diagnosis A reference guide on what to do next after learning of a new Fragile X diagnosis. ENGLISH SPANISH [...]
I like to talk about #pandemicPositive – there is plenty that has been hard(er) this year, but we have also seen lots of good. So, I polled my fellow staff members for some examples of the impact we all made this year through your support.
Fragile X Info Series Browse our available information flyers designed to be easily printable on home and office printers. We created these so you can distribute them as needed, whether it’s for a neighbor, [...]
RESEARCH REQUESTS International Fragile X Premutation Registry The International Fragile X Premutation Registry is a HIPAA- and GDPR-compliant registry created to aid researchers in the Fragile X premutation field. The [...]
March 3, 2021 The NFXF-Led Patient-Focused Drug Development Meeting for Fragile X Syndrome Voice of the Patient Meeting Report Meeting Recording — A recording of the entire meeting is now available, on demand. [...]
FORWARD-MARCH — Now Open for Enrollment! A Brief History of FORWARD What is FORWARD-MARCH? Who Can Participate in FORWARD-MARCH? What Does Participation in the Study Look Like? How Can I [...]
Here is your recording of Medication for Individuals with Fragile X Syndrome. Many thanks to Dr. Craig Erickson for his 8th free webinar on the ever-popular subject of medication for individuals living with Fragile [...]
Meet Our Donors Our donors and fundraisers are dedicated and inspiring members of the community who are committed to ensuring that the National Fragile X Foundation is here to provide unwavering support to Fragile [...]
