The Bridges Family
The Bridges Family Laurie and Will Bridges have a daughter, Caroline, who was diagnosed with Fragile X Syndrome when she was five years old. Caroline is now 16 and starting her senior year in high [...]
15
09, 2020
Need a new search?
If you didn't find what you were looking for, try a new search!
19
06, 2020
Fragile X Awareness
Fragile X Awareness National Fragile X Awareness Day — and Month! 2024 FRAGILE X AWARENESS DAY: Monday, July 22, 2024 2024 FRAGILE X AWARENESS MONTH: July 2024 In [...]
9
06, 2020
PIXI Study: Parent-Infant Fragile X Intervention
RTI International and the University of North Carolina at Chapel Hill are conducting an early intervention study to learn about the best ways to support early development in infants identified with the full mutation of Fragile X. Babies 0–9 months old with the full mutation, and their caregivers, may be eligible to participate.
6
05, 2020
Transition to Adult Services for Individuals with Fragile X Syndrome
Consensus of the Fragile X Clinical & Research Consortium Transition to Adult Services for Individuals with Fragile X Syndrome Reading Time: 38 min.—|—Last Updated: Dec. 2021—|—First Published: Dec. 2021—|—Download PDF Services [...]
7
04, 2020
My Child is Home… Now What?? Play Skills
In this webinar, Rebecca Shaffer guides us through some pointers about how to build play skills while your children are at home, and some great resources for thinking through different play opportunities while they’re at home.
31
03, 2020
How to Help Your Child Cope with COVID-19
Dr. Marcia Braden provides tips and resources, including social story and visual schedule templates, to help you and your children during the COVID-19 pandemic.
26
03, 2020
We’re Here to Help During This Extraordinary Time
LINDA SORENSEN — With most of us staying at home now, we’re committed to providing you with the most timely and meaningful educational resources we have available. This includes sharing a series of articles, video series, and webinars.
13
03, 2020
COVID-19: My child is home from school or work or a day program! What do I do?
Timely advice from Jayne Dixon Weber for parents and families asking: What am I going to do with the children all day? How do I get supplies in the house? What if someone gets sick? What if I get sick? What about my work? What if things fall apart at home?
1
12, 2019
Toileting Issues in Fragile X Syndrome
Toileting Issues in Fragile X Syndrome Consensus of the Fragile X Clinical & Research Consortium Introduction: Toilet training, which can be challenging even in the general population, is characteristically an [...]
18
10, 2019
Estate Planning: Special Needs Planning for Individuals and Caregivers — Webinar
Learn how to leave money and other assets for the benefit of a child with special needs without causing the child to lose important public benefits.