By Hilary Rosselot|2023-05-15T12:50:36-04:00Oct 25, 2022|Blog, Research, Research Results|
The pandemic caused by the spread of the coronavirus disease (COVID-19), beginning in early 2020, had an impact beyond anything experienced in recent history. It is important to understand how this pandemic era has impacted school-aged children with FXS so that we may continue to successfully navigate the changes that come with living through a pandemic and to understand what we can improve in the case of a future pandemic.
By Kristin Bogart|2024-07-11T09:56:42-04:00Aug 2, 2022|
Xtraordinary Individuals We asked the Fragile X community to tell us about someone Xtraordinary in their lives. We heard from parents, professionals, friends, co-workers, grandparents, employers, cousins, doctors, and mentors, who told us about [...]
By Hilary Rosselot|2023-03-16T14:11:47-04:00Jul 26, 2022|NFXF Awards|
Our 2022 NFXF awards are in! Learn more about each award and about each of our awardees.
By Kristin Bogart|2023-12-20T17:31:23-05:00Jul 17, 2022|Daily Living, FXS, School and Education, Webinar Conference|
Learn how Assistive Technology (AT) can be the vehicle affording the opportunity for a person with FXS to be more fully included in play, school, home, work, and the community.
By Kristina Udice|2023-12-19T17:12:39-05:00Jul 17, 2022|Daily Living, FXS, School and Education, Webinar Conference|
Learn in this webinar the pathological progression of several longitudinally followed patients with FXTAS at the UC Davis Fragile X Research and Treatment Center.
By Kristin Bogart|2024-01-11T17:54:02-05:00Jul 17, 2022|Daily Living, FXS, School and Education, Webinar Conference|
Learn about research and findings from a study understanding the impact of COVID-19 and the pandemic on children with FXS.
By Kristin Bogart|2024-04-08T16:34:34-04:00Jul 16, 2022|Webinar, Webinar Conference|
Experts in the field discuss support and solutions for females with Fragile X in this panel discussion and Q&A. Join Jennifer Barber, Susan Howell, Barbara Haas-Givler, Nicole Tartaglia, Rebecca Shaffer, and Laurie Bridges.
By Kristin Bogart|2024-04-08T16:36:28-04:00Jul 16, 2022|Webinar, Webinar Conference|
This session discusses specific strategies to help promote and support essential social skills for those with Fragile X. Presented by Barbara Haas-Givler.
By Kristin Bogart|2024-01-11T17:59:15-05:00Jul 16, 2022|Daily Living, FXS, School and Education, Webinar Conference|
This session explores ways to promote inclusivity at a young age for children with Fragile X syndrome. Presented by Jeanine Coleman, PhD.
By Missy Zolecki|2023-12-20T14:39:03-05:00Jul 15, 2022|Webinar|
A panel of experts present research-based information on the factors that promote or hinder the transition to independence of young adults with FXS after completion of high school and formal education. Panelists Leonard Abbeduto, Jessica Klusek, Angie Thurman, and Julie Lounds Taylor also take questions from the audience.
