Our Board
Meet the NFXF board of directors. While we are here to serve all those living with Fragile X, we couldn’t do what we do without the support of the entire Fragile X community.
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06, 2023
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27
06, 2023
Our Advisors
The NFXF Scientific & Clinical Advisory Committee The NFXF's Scientific and Clinical Advisory Committee (SCAC) is a group of clinical and research professionals who are thought leaders in the Fragile X field. [...]
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06, 2023
Physical & Medical Concerns
Physical & Medical Concerns From Our Info Series Treatment Recommendations Webinars More Resources Fragile X Clinics Fragile X clinics provide medical services (including medication evaluations and consultations) supervised [...]
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06, 2023
The Fragile X Clinic and Research Program at Rush University Medical Center
Highlighting the Fragile X Clinic at Rush University Medical Center, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
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05, 2023
The diagnostic experience of women with fragile X–associated primary ovarian insufficiency (FXPOI)
Researchers at Emory University conducted qualitative interviews with 24 women with FXPOI exploring how FMR1 screening, physician education, and supportive care impacted their experience receiving a diagnosis. Their results are in!
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05, 2023
Females with FXS: Strategies for Developing Executive Functioning and Social Skills — Webinar
Barb Haas-Givler presents a one-hour Q&A session on resources and strategies for the classroom, home, and community.
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03, 2023
Medications for Fragile X Syndrome
Medications for Fragile X Syndrome Medications are at times helpful in attaining optimal life skills and smoother integrations into educational, adult, and social environments. Medications for Individuals with Fragile X Syndrome — Treatment [...]
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03, 2023
Adulthood & Fragile X Syndrome
Adulthood and Fragile X Syndrome Challenges faced by adults with Fragile X syndrome — and their caregivers — may include cognitive, learning, communication, and physical and medical issues. Difficulties in adulthood often begin with [...]
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02, 2023
Welcome Class of 2023 Board Members
Executive Director Hilary Rosselot welcomes the incoming class of 2023 Board Members. We look forward to working together to serve the entire Fragile X community.
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01, 2023
My Fragile X Advocacy Journey
NFXF Director of Community Empowerment, Missy Zolecki, shares her recent experience as a consumer reviewer for the Department of Defense Peer Reviewed Medical Research Program