Multidisciplinary Treatment of Fragile X Syndrome (FXS) — Webinar
Drs. Craig Erickson, Laura Hess, Kerrie Chitwood, and Rebecca Shaffer joined us for a one-hour Q & A discussing the benefits of a multidisciplinary team.
13
12, 2023
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21
11, 2023
Publication Summary: Insight and Recommendations for Fragile X Premutation Associated Conditions from the 5th International Conference on FMR1 Premutation
This summary gives a broad overview of the main themes discussed at the 5th International Conference on FMR1 Premutation in early 2023.
9
11, 2023
International Fragile X Conference
The 19th International Fragile X Conference (2024) is happening July 25-28, 2024 at Renaissance Sea World in Orlando.
31
10, 2023
Donate
For 40 years, the NFXF has been an essential resource, assisting families living with Fragile X across their lifespan, as well as the professionals who strive to serve them throughout their careers.
6
09, 2023
Reproductive Health — Webinar
Drs. Heather Hipp and Victoria Wilkins joined us for an informative webinar on the topic of Reproductive health. This is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.
27
08, 2023
Reproductive Health and Your Options
Reproductive Health and Your Options There is no one way to grow a family. Whether you know you carry a gene that can be passed on to your future children and want to explore [...]
27
08, 2023
Fragile X and Puberty & Sexuality
Reproductive health is a broad topic. In general, it’s the condition of the reproductive system concerning a person’s physical, mental, and social well-being at all stages of life. It also refers to sexuality, reproductive options, and family planning. These topics can be challenging to cover, but they are essential!
1
08, 2023
The Fragile X Clinic at Texas Children’s Hospital
Highlighting the Fragile X Clinic at Texas Children's Hospital, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
29
06, 2023
Explore the Many Ways to Give
Explore the Many Ways to Give The most common way to give is donating online, and here you’ll find more ways to give. We’re here to help with your planning. Contact us by [...]
28
06, 2023
Housing Options for Adults With Fragile X Syndrome: Parents Share Their First-Hand Experiences — Webinar
Adult housing options and support services may be limited and difficult to access. A group of parents shared their firsthand experiences supporting their loved one with Fragile X determine a suitable living situation.