Zac is an amazing 13 year old who can do anything he sets his mind to. He loves so unconditionally it's amazing. He was diagnosed when he was a little over 3 years old after [...]

Ryan, 13 years old with FX, Autism and ADHD has a lot of challenges, including sensory, social awareness and other things that he really doesnt like to do. But Mom and Dad inspired him to [...]

I have three sons my two older sons are affected by FXS , Kyle is 14- he just graduated from middle school and will be attending our local high school next year. He is also [...]

Ben was a born entertainer. The idea of becoming a voice impressionist was suggested by many, but it wasn't until Ben's first business flopped, that he looked at the possibility seriously. He wrote down all [...]

I'm Chelsea Owens and I'm 19, soon to be 20 in September and I was diagnosed with the full mutation of FX when I was 7 years old. I'm not severely affected by it. I attended [...]

I was a young mother of a beautiful baby boy name Brendan. I started noticing at a young age Brendan was not the same as other kids. He was taking a lot of meltdowns a [...]

My brother, Albert Guerrero was born on January 23, 1943 and was a treasure to our family and everyone who knew him. He was not diagnosed with Fragile X until 1988. He was diagnosed with [...]

Lauren was born 6 February, 2007, our firstborn, and it would have been impossible to have been prouder parents. I cried when I went to the waiting room to tell my in-laws that they had [...]

Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]

Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]

Jack was diagnosed with FXS a little over ten years ago when he was just shy of his second birthday. The first signal that something was up was his lack of talking. He still can't [...]

My son, Ryan, who will be 4 July 26, was diagnosed with Fragile X Syndrome in October 2009. Ryan is full of energy and life. Every day is full of smiles and laughter and everyone who [...]