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The NFXF Blog


Moving Forward While Glancing Back

By |Apr 29, 2011|

From the Executive Director The National Fragile X Foundation (NFXF) is a forward looking organization - a necessity in today's fast-changing Fragile X world. That necessity explains why we played a key role in co-founding [...]

“Reality” Check

By |Apr 29, 2011|

Reality shows have taken over our television programming. Rather than watching fictional characters perform comedic,suspenseful or dramatic scripts, we now observe "real" people compete, struggle, argue and live their lives. These programs entertain us and [...]

Research Study for Premutation Males Ages 18-50

By |Apr 25, 2011|

The University of California, Davis MIND Institute is currently recruiting men with the Fragile X premutation between the ages of 18-50 to participate in a research study focusing on emotion and memory. Participation includes 2 [...]

Take the National IDEA Survey!

By |Apr 13, 2011|

The Individuals with Disabilities Education Act (IDEA) will be reauthorized within the next year or two. To prepare for the reauthorization of IDEA, several disability organizations are sponsoring a survey that seeks to answer this [...]

Longitudinal Outcomes & Neuroimaging of FXS…

By |Dec 13, 2010|

Longitudinal Outcomes and Neuroimaging of Fragile X Syndrome + Neurodevelopmental Profiles of Infants and Preschool Age Children with Fragile X Syndrome By Aubrey Rho, Stanford University School of Medicine Mentors: Amy Lightbody, PhD and Allan [...]

Fragile X Premutation and FXPOI

By |Jan 7, 2010|

Analysis of Ovaries from FMR1 CGG Repeat Mice Research Summary: National Fragile X Foundation – Translational Research Grant Renate Hukema PhD - $50,000 Erasmus MC, The Netherlands SPECIFIC AIMS: The CGG repeat sequence located in [...]