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The NFXF Blog

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All About Jack

By |Jun 29, 2011|

Jack was diagnosed with FXS a little over ten years ago when he was just shy of his second birthday. The first signal that something was up was his lack of talking. He still can't ...

Ryan, the happiest little boy

By |Jun 29, 2011|

My son, Ryan, who will be 4 July 26, was diagnosed with Fragile X Syndrome in October 2009. Ryan is full of energy and life. Every day is full of smiles and laughter and everyone who ...

My brother and me

By |Jun 29, 2011|

My brother Zachary loves is 22.  He loves swinging outside when the Mississippi weather isn't too hot.  He watches vintage cartoons, listens to country music, and enjoys being in control of every TV in the ...

Mother and Daughter new diagnosed

By |Jun 29, 2011|

My daughter who is now 2 and a half started showing signs of being a bit different and an early age. At 8 months I decided to start looking into things myself. Doing research and ...

A Blessing with a smile

By |Jun 29, 2011|

Meet Jayson he is 19 going on 20 full mutation and none verbal. We were a slow in getting a proper diagnosis for him. Doctors gave us everything under the sun, until one day at ...

There is nothing we can't do!

By |Jun 28, 2011|

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis ...

There is nothing we can’t do!

By |Jun 28, 2011|

My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis ...

Never Give Up

By |Jun 28, 2011|

In the spring of 2003, Parker (then 3 1/2) & Allison (7 mo) were diagnosed with Fragile X. In many ways, the diagnoses greatly changed who we are. We went from a family who had ...

Love of Paper Leads to Work as an Adult

By |Jun 28, 2011|

Jodi has always had a love of paper... coloring, drawing, worksheets and creating notes and letters to pass out to people she knows. One day when she was in elementary school we watched her quickly ...

Andrew: The Apple of Our Eyes

By |Jun 28, 2011|

We were just another family saying "Fragile WHAT?" when our son Andrew was diagnosed with Fragile X syndrome back in 2002, three months before his 2nd birthday. After his diagnosis, many other carriers were discovered ...