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The NFXF Blog

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Sweetness

By |Jun 30, 2011|

Meet Ian, 7; Avery, 5; and Benjamin, 4.  Each diagnosed with full mutation Fragile X.  Each very unique and wonderful in who they are.  Ian has come further than we ever imagined he would after ...

A Miracle We Never Expected

By |Jun 30, 2011|

Peter, age 3, in the orange sweater vest, has full mutation FX with endless possibilities to achieve all that he dreams. Peter has an infectious smile and heart that could warm the Arctic. His older ...

Masons World

By |Jun 30, 2011|

Mason is a happy energetic 9 year old boy. He puts a smile on anyone's face once they get to know him. He is very curious about all life around him. Mason gets in to ...

The love of my life

By |Jun 30, 2011|

This is our son Hunter Wilhite, he is 9 years old. He was diagnosed with Fragile X at an early age, and we were devastated. After years of grieving and feeling sorry for ourselves, we ...

Evyn Anderson

By |Jun 30, 2011|

Evyn is 9 and full of life. His favorite hobby is puzzles. He loves to swim and ride his bike and go to church. Life is a new adventure every day. Fragile X Syndrome is ...

My Amazing Son

By |Jun 30, 2011|

Zac is an amazing 13 year old who can do anything he sets his mind to. He loves so unconditionally it's amazing. He was diagnosed when he was a little over 3 years old after ...

Challenges and Triumphes of Ryan

By |Jun 30, 2011|

Ryan, 13 years old with FX, Autism and ADHD has a lot of challenges, including sensory, social awareness and other things that he really doesnt like to do. But Mom and Dad inspired him to ...

My Three Sons

By |Jun 30, 2011|

I have three sons my two older sons are affected by FXS , Kyle is 14- he just graduated from middle school and will be attending our local high school next year. He is also ...

Self Employed as an Entertainer

By |Jun 29, 2011|

Ben was a born entertainer. The idea of becoming a voice impressionist was suggested by many, but it wasn't until Ben's first business flopped, that he looked at the possibility seriously. He wrote down all ...

FX Achievement

By |Jun 29, 2011|

I'm Chelsea Owens and I'm 19, soon to be 20 in September and I was diagnosed with the full mutation of FX when I was 7 years old. I'm not severely affected by it. I attended ...

i love someone with fragile x

By |Jun 29, 2011|

I was a young mother of a beautiful baby boy name Brendan. I started noticing at a young age Brendan was not the same as other kids. He was taking a lot of meltdowns a ...

A Tribute To My Brother

By |Jun 29, 2011|

My brother, Albert Guerrero was born on January 23, 1943 and was a treasure to our family and everyone who knew him. He was not diagnosed with Fragile X until 1988. He was diagnosed with ...