No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

Our son, Jackson, is the light of our lives. When we received his diagnosis, we had never heard of Fragile X Syndrome. We have been so fortunate to be connected with other amazing families like [...]

My name is Genia and I am the blessed sister of GeMon aka Money. This young man is one of the most sincere and loving spiritual beings you will ever meet in your life. Through [...]

Evan has always had that something special and unique about him, you could see it in his eyes and his smile long before we ever heard the term Fragile X syndrome. I am so proud [...]

We have an extra special little girl with fragile x. Miss Mili is 3. After a year and a half into feeding, speech, and occupational therapy Mili has come a long way from the baby [...]

My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]

My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]

I really don't know the story that well, my mom could probably share it better, but i wanted to tell it. My mom is the eldest of 4 brothers also the only one that doesn't [...]

Elise is 8 years old and full of life!! She is happy, bright and kind. Elise continues to thrive on her own and with educational/social intervention as needed. She takes her role as sister, cousin, [...]

My son Grayson was diagnosed with Fragile X Syndrome when he was 7 months old. His pediatrician, who is absolutely the most amazing doctor, noticed that he was mildly delayed. She said that she wanted [...]

Our son Mick was diagnosed with FXS a year ago, just before his 2nd birthday. I had never heard of FXS nor was I aware that I carried the gene. Mick is the youngest of [...]