The NFXF Blog
URGENT: National Institutes of Health call for Update to Fragile X Research Plan
The NIH has extended the deadline to March 16, 2012. The National Institutes of Health (NIH) has asked the National Fragile X Foundation to help organize feedback regarding the aims and future direction of [...]
Does Your Child Need Help to Improve His/Her Math Skills?
Stanford University Standford University Research Individuals with Fragile X Syndrome Age 9-23 Years Needed We are conducting a behavioral treatment study utilizing a fun, reward-based learning paradigm to maximize your child’s learning potential. Participation [...]
A Mom's Introduction to Advocacy Day
The following is a personal blog post written by Melissa Welin, Co-Founder of the Fragile X LINKS Group of Eastern Massachusetts giving an introduction to Advocacy Day through the eyes of a first time advocate. [...]
Start Planning Your 2012 Fundraiser Today!
With the bustle of the holiday season behind us, now is the perfect time to start planning a 2012 fundraiser! The NFXF relies on support from small events, and we look forward to assisting new [...]
(Fragile) X Marks a Life-Changing Spot
Source: Department of Defense: Congressionally Directed Medical Research Programs Andrew Selinger The dream of every parent is for each of their children to be happy and healthy. For Andrew Selinger, that dream is bittersweet. His [...]
How Do You Say I Love You?
We have a special little project just around the corner and need your help! We all show and say I love you in many different ways - We want to see how you and your [...]
Welcome to Your New National Fragile X Foundation Website!
We know from years of feedback that the website serves as a useful and important resource for many newly diagnosed individuals and families as well as longtime members of the Fragile X community. Early in [...]
Oh No They Didn’t! NFXF Launches New Website, Logo and First Brand Tagline
FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on Fragile X syndrome, launched its new website today. The site, fragilex.org, [...]
Study of Fragile X Treatment Preferences
RTI International RTI International{{1}}, an independent, nonprofit research organization, is conducting an important study. The purpose of this study is to better understand the views of people who provide care to a son or [...]
The Flu and Fragile X Syndrome
MMWR Article: Severe Influenza Among Children and Young Adults with Neurologic and Neurodevelopmental Conditions — Ohio, 2011 CDC published a new report in MMWR: “Severe Influenza Among Children and Young Adults with Neurologic and Neurodevelopmental [...]
The 2012 Federal Budget: What it Means for Fragile X Programs and Funding
Good news! The 2012 federal budget process has finally concluded, and Fragile X has emerged from the process with federal funding and programs intact. This was only because of the relationships we’ve nurtured and grown [...]
Focus on Fundraisers: December
2011 Annual Fund Since 1984, the NFXF has made it a goal to always be looking forward. Whether we are providing support and information for a newly diagnosed family, advocating each year for federal funding [...]