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The NFXF Blog

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Upcoming Events for October 2011

By |Sep 30, 2011|

Here are highlights of upcoming Fragile X Events in the month of October and the beginning of November. Check out our Events Calendar to see what else is going on. Click on each event link [...]

September Fragile X Fundraisers Review

By |Sep 30, 2011|

Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]

Our Fragile X World adds over $7,000 to NFXF

By |Sep 29, 2011|

We've previously announced Our Fragile X World through our social media accounts, our Fragile Xtras e-newsletter and the NFXF Quarterly. Our Fragile X World is a community of families and researchers dedicated to using survey [...]

2nd Annual Hat Party

By |Sep 13, 2011|

National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing!  The Northern California [...]

Spotlight Group: Fragile X Families of SW Chicago

By |Aug 30, 2011|

The Fragile X Families of SW Chicago is a newly formed and very active parent support group headed by LINKS Leader, Missy Zolecki. Missy and her husband, Mark have been married for almost 13 years.  [...]

Alex

By |Aug 20, 2011|

My son Alex was diagnosed with Fragile X syndrome at the age of 2 and half years of age and i was scared to death and new nothing about it. I later found out that [...]

Mrs.

By |Aug 10, 2011|

My two babies are now 12 year old Margaux and 9 1/2 year old Garrick and what a wicked ride! We get to spend 6 weeks each summer driving from Florida to Massachusetts and Maine [...]

Boy to a man Jermaine smith

By |Aug 9, 2011|

Jermaime is now 23 he has a job and love to socialize. He has many friends, love talking on the phone and going out. He is the the oldest of four sons. He is loved [...]

Every body knows Jermaine and Jamie

By |Aug 9, 2011|

Jermine and jamie grow up to be such a wonderful young men 23 and 18 both love church and love to socialize every where we they both know someone. They are both loved by two [...]