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The NFXF Blog

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My Extra Special Day

By |Jul 31, 2011|

I have had the joy of watching you grow into an amazing young woman. Thank you for being my extra special daughter and sister to your brother. We are proud of you and all that [...]

Focus on Fundraisers: July

By |Jul 29, 2011|

Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness.  Guests [...]

Spotlight on LINKS Group: Families for Fragile X

By |Jul 29, 2011|

When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled.  Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]

Cody Man

By |Jul 25, 2011|

Our son Cody was diagnosed with Fragile X after his daycare told me that he was not a "normal" 2.5 year old.  So, I began to seek out help from his doctors.  I started out [...]

My Three Beautiful Children

By |Jul 23, 2011|

In 1998 and 2001 we had our two daughters. Jessica and Victoria. Jessica showed signs of developmental delays and speech problems, but I was always told she'll be fine. Victoria was right on track developmentally, [...]

Who doesn't know Sean?

By |Jul 22, 2011|

No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

Who doesn’t know Sean?

By |Jul 22, 2011|

No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]

Our Amazing Boy

By |Jul 22, 2011|

Our son, Jackson, is the light of our lives. When we received his diagnosis, we had never heard of Fragile X Syndrome. We have been so fortunate to be connected with other amazing families like [...]

Gemon Jones-My Hero

By |Jul 22, 2011|

My name is Genia and I am the blessed sister of GeMon aka Money. This young man is one of the most sincere and loving spiritual beings you will ever meet in your life. Through [...]

Making a Splash

By |Jul 22, 2011|

Evan has always had that something special and unique about him, you could see it in his eyes and his smile long before we ever heard the term Fragile X syndrome. I am so proud [...]

Miss Mili

By |Jul 22, 2011|

We have an extra special little girl with fragile x. Miss Mili is 3. After a year and a half into feeding, speech, and occupational therapy Mili has come a long way from the baby [...]

My Grandson – Hayden Makris

By |Jul 22, 2011|

My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]