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The NFXF Blog

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Andrew: The Apple of Our Eyes

By |Jun 28, 2011|

We were just another family saying "Fragile WHAT?" when our son Andrew was diagnosed with Fragile X syndrome back in 2002, three months before his 2nd birthday. After his diagnosis, many other carriers were discovered [...]

Cape Cod Vacations and College Plans

By |Jun 28, 2011|

Patrick, 19 non verbal, affected, full mutation with sister, Kelley, 17, full mutation at the beach last summer. This picture involves one of Patrick's favorite things to do with his family. We go to Cape [...]

Brighton's Love of Horses

By |Jun 28, 2011|

Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]

Brighton’s Love of Horses

By |Jun 28, 2011|

Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]

Jack the teacher

By |Jun 28, 2011|

When our son Jackson was diagnosed with Fragile X Syndrome before his third birthday, we went through many emotions. It took awhile to accept that "God doesn't give you anything you cannot handle" and "Everything [...]

One gift

By |Jun 28, 2011|

My name is Winston and I'm 6 years old. While my family gives me lots of presents for Christmas, I most enjoy loving on my younger brother, Spencer. It is the one gift I can [...]

Focused on his future

By |Jun 28, 2011|

We found out our oldest child Jacob had Fragile X syndrome 3 days after his 3rd birthday in October of 2003. Shortly afterward we discovered his little sister Samantha had the full mutation too... she [...]

A Special Sibling Bond

By |Jun 28, 2011|

Josh is a 17 year old, happy and charming young man... one of the kindest and most compassionate teenagers I have ever known. He is severely affected with Fragile X syndrome and Autism and I [...]

Darienne's Passions: Dance and Cheerleading

By |Jun 28, 2011|

"Nothing great in the world has been accomplished without passion" ~ Hegel Darienne has a passion for dance. She began dancing at 4 years old and danced for 15 years, taking classes in ballet, tap, [...]

Darienne’s Passions: Dance and Cheerleading

By |Jun 28, 2011|

"Nothing great in the world has been accomplished without passion" ~ Hegel Darienne has a passion for dance. She began dancing at 4 years old and danced for 15 years, taking classes in ballet, tap, [...]

The Team Fragile X Slot Car

By |Jun 10, 2011|

We have a friend in Italy named Richard Bennett who participates in slot car racing for Team Fragile X. Check out the sweet FX custom-designed Lancia Stratos. An earlier design for this car was used [...]