Meet Our Donors
Our donors and fundraisers are dedicated and inspiring members of the community who are committed to ensuring that the National Fragile X Foundation is here to provide unwavering support to Fragile X families now and into the future. They know that life with Fragile X is often unexpected and sometimes incredibly challenging. They support our advocacy, awareness, and research programs, as well as our ability to provide timely educational resources and dedicated community support services that help Fragile X families each and every day.
Our 2024 NFXF Awardees
Our 2024 NFXF awards are in! Learn more about each award and the respective awardees.
The Greater Chicago Fragile X Families Raise Awareness at the Brookfield Zoo Tree Trim
The Greater Chicago Fragile X chapter families gathered on a sunny day in November to support the Brookfield Zoo and its annual Tree Trim event, and to raise awareness for Fragile X families everywhere.
The Bridges
The Bridges support the National Fragile X Foundation because of the life-changing opportunities they discovered for their daughter Caroline.
The Stedkes
For Kerry Stedke, creating awareness about Fragile X and becoming an advocate for individuals with intellectual disabilities is critically important.
Making Waves for Fragile X: The 7th Annual Fishing for a Cure Fundraiser
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2023! Check out the big fish and the big smiles.
FORE! Fragile X Annual Golf Event Raises over $250,000 for the NFXF!
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has raised over $250,000 for the National Fragile X Foundation. Thank you Jay, Anne and Alec - and your many supporters over the years!
The Heymans
Gail and her husband Lyons have been supporters of the NFXF since 2005 when she helped host the NFXF International Conference in Atlanta.
The Sarups
Jordan Sarup is 12 years old and has Fragile X syndrome. Meet a family who goes the extra mile to help their son — and every child living with Fragile X.
The Souders
Anne discovered the NFXF early in her quest for support for her family after her son Alec was diagnosed with Fragile X syndrome at age four.
The Silvers
The NFXF was there at the beginning of their Fragile X journey, and the Silvers want to ensure it’s there for everyone’s journey.
NFXF Western MA Chapter Hosts Cork and Cafe Fundraiser
After a two-year pause due to COVID, NFXF Western Massachusetts Chapter raises $4,000 at 4th annual wine tasting fundraiser.
Heartland Chapter Hosts Annual X-Strides Run/Walk Fundraiser
NFXF Heartland - Iowa | South Dakota Chapter raises $6,500 at its annual X Strides Run/Walk event at the Briarwood Gold Course in Ankeny, IA.
Announcing Our 2022 NFXF Awardees
Our 2022 NFXF awards are in! Learn more about each award and about each of our awardees.
The Marner Family Hosts 3rd Annual Golf Outing in Support of NFXF
The 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success — in spite of the threat of a downpour!
The 5th Annual Bike to X Out Fragile X
The 5th Annual Bike to X Out Fragile X is in the books and another success in raising support and awareness of Fragile X in Iowa. Nancy Carlson, the NFXF Heartland Chapter leader and Fragile X mom tells us all about it.
A Workplace Fundraiser You’ll Want to Copy
Matt Faruolo wanted to do something to raise awareness about Fragile X, so he decided to host a weeklong fundraising event at work. Here’s how he did it.
Image (featured) by wagnercvilela from Pixabay