Faces of Fragile X

I think it is important for everyone to be the best person that they can be. It doesn't matter what your abilities are. Every person in this world has a place in it, and can [...]

My son Nathaniel (5) has Fragile X. 

Daniel Steiger is 25. He has attended a day-program since 'graduating' in 2005. Daniel also volunteers with local Sheriff's Departments to help paint over graffiti. When asked what he wants for his birthday or Christmas, all Daniel [...]

I have a brother named Matt, he is 10 years old. We like to "camp"(sleep in each others room) and ride bikes together. When I get older I want to become a teacher who helps [...]

Our oldest son Matt(10) was diagnosed at birth, something we thought we had avoided through some advanced reproductive technology. After the initial shock, we decided we were chosen for our sweet boy. He had the [...]

Benjamen is only 21 months but showes me no matter what he tryes to do he will keep tring till he gets it done. He is so special. He does not let anything stand in [...]

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

This is Caden. Or to us "Little Bit". Caden may be little and cute but he sure leaves a huge impact on people. Words can't explain what a blessing Caden is to us. God has [...]

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

This is a wonderful picture of me and my sister Marie DeBernardis, who came to see me over Thanksgiving of last year.

Louis, our beautiful son, was diagnosed with FX/autism.  He is the light of our life.  At first when we got the diagnosis it was devastating.  But we realized that just because Louis is not what [...]

Ryan is my 19 year old son who was diagnosed with full mutation at age 5 in 1996. Fifteen years later, I am thrilled and amazed at what Ryan has accomplished. His "Can Do" attitude and [...]

Spencer Shelton is a 20-year-old second-year student at Eastern New Mexico University in Roswell, NM, "the center of the alien universe," as Spencer puts it. Spencer's home is in Mesilla, NM, a 3-hour drive from [...]