Faces of Fragile X

Fragile X syndrome is an inherited intellectual and developmental disability, and each individual is — well, individual. They are Xtraordinary in their own way.

Below are just a sampling of individuals with Fragile X — a gallery we call Faces of Fragile X. Click on each photo to learn more about them. And, remember, one day you may meet someone with Fragile X syndrome, or you may already know someone. They may be shy, anxious, have difficulty making eye contact, and have short attention spans, but they want to be social. They want to be your friend. Be friendly, patient, and talk to them. They will warm your heart.

Learn more about Fragile X syndrome and support Fragile X awareness, education, and research with a donation.

Destination: DISNEYLAND!

By |2017-07-31T15:33:37-04:00Jul 1, 2011|Faces of Fragile X|

Daniel Steiger is 25. He has attended a day-program since 'graduating' in 2005. Daniel also volunteers with local Sheriff's Departments to help paint over graffiti. When asked what he wants for his birthday or Christmas, all Daniel [...]

My Awesome Brother

By |2017-07-31T15:33:37-04:00Jul 1, 2011|Faces of Fragile X|

I have a brother named Matt, he is 10 years old. We like to "camp"(sleep in each others room) and ride bikes together. When I get older I want to become a teacher who helps [...]

Fragile What?

By |2017-07-31T15:33:36-04:00Jul 1, 2011|Faces of Fragile X|

Our oldest son Matt(10) was diagnosed at birth, something we thought we had avoided through some advanced reproductive technology. After the initial shock, we decided we were chosen for our sweet boy. He had the [...]

benjamen

By |2017-07-31T15:33:35-04:00Jul 1, 2011|Faces of Fragile X|

Benjamen is only 21 months but showes me no matter what he tryes to do he will keep tring till he gets it done. He is so special. He does not let anything stand in [...]

Gramma’s FX Baby

By |2017-07-31T15:33:34-04:00Jun 30, 2011|Faces of Fragile X|

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

Gramma's FX Baby

By |2011-06-30T20:58:50-04:00Jun 30, 2011|Faces of Fragile X|

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]

Our Blessing

By |2017-07-31T15:33:33-04:00Jun 30, 2011|Faces of Fragile X|

This is Caden. Or to us "Little Bit". Caden may be little and cute but he sure leaves a huge impact on people. Words can't explain what a blessing Caden is to us. God has [...]

Cheech & Chong

By |2017-07-31T15:33:32-04:00Jun 30, 2011|Faces of Fragile X|

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

Cheech & Chong

By |2011-06-30T19:26:08-04:00Jun 30, 2011|Faces of Fragile X|

Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities.  They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]

Two Sisters

By |2021-08-20T12:52:09-04:00Jun 30, 2011|Faces of Fragile X|

This is a wonderful picture of me and my sister Marie DeBernardis, who came to see me over Thanksgiving of last year.

My blue eyed angel

By |2017-07-31T15:33:31-04:00Jun 30, 2011|Faces of Fragile X|

Louis, our beautiful son, was diagnosed with FX/autism.  He is the light of our life.  At first when we got the diagnosis it was devastating.  But we realized that just because Louis is not what [...]

Never Give Up

By |2017-07-31T15:33:30-04:00Jun 30, 2011|Faces of Fragile X|

Ryan is my 19 year old son who was diagnosed with full mutation at age 5 in 1996. Fifteen years later, I am thrilled and amazed at what Ryan has accomplished. His "Can Do" attitude and [...]

The Car Guy

By |2017-07-31T15:33:29-04:00Jun 30, 2011|Faces of Fragile X|

Spencer Shelton is a 20-year-old second-year student at Eastern New Mexico University in Roswell, NM, "the center of the alien universe," as Spencer puts it. Spencer's home is in Mesilla, NM, a 3-hour drive from [...]

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