RECONNECT Trial Provides Flexibility for Families
Zynerba's RECONNECT trial provides flexibility for families with it's new virtual/at-home enrollment option
Community Event Highlights – Sibling & Self-Advocate Network (SSAN)
NFXF Sibling & Self-advocate Network hosted and organized virtual events to bring together the Fragile X community.
Community Event Highlights – NFXF Connecticut Chapter
NFXF Connecticut Chapter hosted and organized local events to bring together the Fragile X community.
Community Event Highlights – NFXF Western Massachusetts Chapter
NFXF Western Massachusetts Chapter hosted and organized local events to bring together the Fragile X community.
Community Event Highlights – NFXF Greater Chicago Chapter
NFXF Greater Chicago chapter hosted and organized local events to bring together the Fragile X community.
The Fragile X Clinic at Phoenix Children’s Hospital
Highlighting the Fragile X Clinic at Phoenix Children's Hospital, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
October 2023 is Disability Employment Awareness Month!
Join us in celebrating Xtraordinary Employees during National Disability Employment Awareness Month!
Cost of Delayed Diagnosis in Rare Disease: A Health Economic Study
The National Fragile X Foundation is proud to be part of the Everylife Foundation’s newest report, The Cost of Delayed Diagnosis in Rare Disease: A Health Economic Study.
Fragile X Clinic at Children’s Hospital Colorado
Highlighting the Denver Fragile X Clinic at Children's Hospital Colorado, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
The 2023 RJH Summer Scholar Presentations Are Now Live!
We asked our 2023 NFXF-funded Randi J Hagerman Summer Scholars to summarize their summer project in a 15-minute video presentation, and here they are!
Thank You Donors — Your Support is Making a Difference
NFXF Executive Director Hilary Rosselot shares recent program accomplishments in 2023 thanks to donors' support.
Center for Autism and Neurodevelopmental Disorders (CANDO)
Highlighting the Fragile X Clinic CANDO at UMass, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
Study: Single Dose Study for Adult Women and Men with FXS
Dr. Craig Erickson at Cincinnati Children’s Hospital Medical Center is conducting a clinical trial to learn about if medication can change the brain’s response to sound, which may be abnormal in FXS.
DOD grant awarded for a FXTAS trial
PureTech Health has been awarded a DOD grant of up to $11.4 million from the DOD for their trial of LYT-300, oral formulation of allopregnanolone, in people with Fragile X-associated tremor/ataxia syndrome (FXTAS).
The University of Miami Miller School of Medicine South Florida Fragile X Clinic
Highlighting the South Florida Fragile X Clinic, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)