By Jeffrey Cohen Director of Governmental Affairs and Advocacy, NFXF The 2012 federal budget remains an unsettled matter. The 2011 fiscal year ends on 9/30 and 2012 begins on 10/1. Under “normal” circumstances the 2012 [...]
Here are highlights of upcoming Fragile X Events in the month of October and the beginning of November. Check out our Events Calendar to see what else is going on. Click on each event link [...]
Walk for Fragile X September 3, 2011 Milwaukee, WI Fragile X LINKS Group of Wisconsin On September 3, the Fragile X LINKS Group of Wisconsin gathered with friends and family for their first [...]
Robert Miller, Executive Director of the NFXF I don't need to tell you that Fragile X syndrome can have a big impact on families! But exactly what is that impact and what can [...]
We've previously announced Our Fragile X World through our social media accounts, our Fragile Xtras e-newsletter and the NFXF Quarterly. Our Fragile X World is a community of families and researchers dedicated to using survey [...]
National Fragile X Foundation Board Member Deborah Kwan is hosting the 2nd Annual Hat Party to benefit the NFXF. Come wearing your favorite hat for a night of drinks, appetizers, and dancing! The Northern California [...]
From the New York State OPWDD press release (STATEN ISLAND) The New York State Office for People With Developmental Disabilities' (OPWDD) Institute for Basic Research in Developmental Disabilities (IBR) has been selected to receive a [...]
The Fragile X Families of SW Chicago is a newly formed and very active parent support group headed by LINKS Leader, Missy Zolecki. Missy and her husband, Mark have been married for almost 13 years. [...]
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]
Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]
Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities. They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]
Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]
My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]
