The Fragile X Families of SW Chicago is a newly formed and very active parent support group headed by LINKS Leader, Missy Zolecki. Missy and her husband, Mark have been married for almost 13 years. [...]
Congratulations to some very special Awareness Day Fundraisers:Carmelina's Wine TastingOn Sunday, July 24th, the Fragile X Resource Group of Western Massachusetts gathered at Carmelina's restaurant for appetizers and wine to promote Fragile X Awareness. Guests [...]
When their son Matthew was diagnosed with Fragile X at the age of 14 months Michele & Paul Kaplan's world crumbled. Thankfully, they were able to attend the International Fragile X Conference in Atlanta two [...]
No matter where we go, Sean seems to know everyone - or they know him! We find ourselves asking "Who are these people!"Sean's eyesight is very good and when he spots someone he knows, he [...]
Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]
Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities. They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]
Nathan is 26 and was diagnosed with Fragile X the same year the National FX Foundation was established. There was no internet or information at that time and no one (even most Dr.'s) had ever [...]
My greatest reward from my journey with 2 boys ( Matthew is 14 and Benjamin is 8 ) with Fragile X is that my mantra has become "There's nothing we can't do!" Since Matthew's diagnosis [...]
Hi, we're Marc and Rachael. We have three children ages 11, 5 and 1... one boy and two girls. They all have Fragile X syndrome. Our oldest, our son, embraces his uniqueness and gets so [...]
"Nothing great in the world has been accomplished without passion" ~ Hegel Darienne has a passion for dance. She began dancing at 4 years old and danced for 15 years, taking classes in ballet, tap, [...]
We have a friend in Italy named Richard Bennett who participates in slot car racing for Team Fragile X. Check out the sweet FX custom-designed Lancia Stratos. An earlier design for this car was used [...]
Joe Wainwright and Eric Sheerin share a bond and now a cause. The Pinehurst, NC, recent college graduates are leaving on a cross-country bike ride June 1 to raise awareness and money for the National [...]
On May 7th, 2011 over 400 people celebrated the 5th Annual Fragile, Not Broken Walk for Knowledge. It poured rained as volunteers from the FX Resource Center of Missouri set up for the event but [...]
Facebook, Twitter, email, blogs, conferences, seminars, group barbecues and long phone conversations. What do these have to do with each other and with Fragile X? They are all places where one can go, or tools [...]
Acamprosate, a drug used to treat alcohol abuse, improves communication and social behaviors associated with a common form of autism. IU autism researcher Craig Erickson, MD, will discuss his ongoing study of acamprosate and Fragile [...]
