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The NFXF Blog

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PFDD Meeting Community Forum

By |Jan 21, 2021|

The Patient-Focused Drug Development (PFDD) meeting on Fragile X syndrome is just around the corner! We need caregivers and self-advocates to participate to make this a valuable meeting. This will help you understand what to expect and what the goal is and how to share your story.

Cortical Gyrification and Its Relationships With Molecular Measures and Cognition in Children With the FMR1 Premutation

By |Dec 17, 2020|

Jun Yi Wang and the study team out of the UC Davis MIND Institute are interested in learning more about the premutation carrier condition in relations to brain development and its impact on cognition. These mental processes impact the higher-level functions of the brain including language, learning new things, and making decisions.

The good stuff from 2020 (no really there is some)

By |Dec 15, 2020|

I like to talk about #pandemicPositive – there is plenty that has been hard(er) this year, but we have also seen lots of good. So, I polled my fellow staff members for some examples of the impact we all made this year through your support.