Shari Silver attended her first NFXF Advocacy Day in 2009, which served as her introduction to everything the NFXF had to offer. Most importantly it created an avenue by which she could be a more active participant in helping her son Justin, 20, have the best life possible after his diagnosis of Fragile X syndrome in 2006.
Since then Shari, her husband, Brian, and their daughter, Hailey, 22, have been active members of our FX community. She is a regular attendee of Advocacy Days, NFXF International Fragile X Conferences, and served as the co-leader of the Community Support Network’s NFXF Greater New York City Chapter for two years. In 2010, the Silvers created the Fly With Me Fund, raising money to assist other families living with FXS and related disorders to access appropriate care and to support FX-related research.
In addition to the NFXF, she is involved at the UC Davis MIND Institute, becoming a member of their National Council of Visitors in 2019. Shari is honored to join the board to help ensure that families to come will always have the support of the NFXF.