Meet Our Donors
Our donors and fundraisers are dedicated and inspiring members of the community who are committed to ensuring that the National Fragile X Foundation is here to provide unwavering support to Fragile X families now and into the future. They know that life with Fragile X is often unexpected and sometimes incredibly challenging. They support our advocacy, awareness, and research programs, as well as our ability to provide timely educational resources and dedicated community support services that help Fragile X families each and every day.
Hope for the Future – NFXF Belonging Grant
Our NFXF Belonging Grant is already making an impact. Learn how we're expanding this program to reach even more families impacted by Fragile X!
Hope for the Future – Find Our People — Video Slideshow
We're on a mission to find and support EVERY family living with Fragile X
The Bridges
The Bridges support the National Fragile X Foundation because of the life-changing opportunities they discovered for their daughter Caroline.
The Stedkes
For Kerry Stedke, creating awareness about Fragile X and becoming an advocate for individuals with intellectual disabilities is critically important.
Marner Family Hosts 5th Annual Quad Cities Fragile X Golf Outing
The annual QC Fragile X golf outing, hosted by the Marner family, has been an incredibly inspiring demonstration of support. Thank you Andrea and Kevin - and your many supporters over the past five years!
Our 2024 NFXF Awardees
Our 2024 NFXF awards are in! Learn more about each award and the respective awardees.
The Heymans
Gail and her husband Lyons have been supporters of the NFXF since 2005 when she helped host the NFXF International Conference in Atlanta.
The Sarups
Jordan Sarup is 12 years old and has Fragile X syndrome. Meet a family who goes the extra mile to help their son — and every child living with Fragile X.
The Souders
Anne discovered the NFXF early in her quest for support for her family after her son Alec was diagnosed with Fragile X syndrome at age four.
The Silvers
The NFXF was there at the beginning of their Fragile X journey, and the Silvers want to ensure it’s there for everyone’s journey.
The Greater Chicago Fragile X Families Raise Awareness at the Brookfield Zoo Tree Trim
The Greater Chicago Fragile X chapter families gathered on a sunny day in November to support the Brookfield Zoo and its annual Tree Trim event, and to raise awareness for Fragile X families everywhere.
Making Waves for Fragile X: The 7th Annual Fishing for a Cure Fundraiser
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2023! Check out the big fish and the big smiles.
FORE! Fragile X Annual Golf Event Raises over $250,000 for the NFXF!
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has raised over $250,000 for the National Fragile X Foundation. Thank you Jay, Anne and Alec - and your many supporters over the years!
Meet The Schutz Family and #TeamWally
Meet #TeamWally, the force of family and friends behind Wally Schutz, who are helping to raise awareness of Fragile X syndrome and FMR1-associated conditions and disorders.
Corporate Matching Gifts Make a Difference!
Corporate matching gifts amplify the impact of your donations to support the Fragile X community. Check to see if your employer has a matching gift program!
Marner Family Hosts 4th Annual QC Fragile X Golf Outing
The annual QC Fragile X golf outing, hosted by the Marner family, has been an incredibly inspiring demonstration of support. Thank you Andrea and Kevin - and your many supporters over the past four years!
Image (featured) by wagnercvilela from Pixabay