Authors: Andy King, Nadia Ali, Cecelia Bellcross, Fabienne Ehivet, Heather Hipp, Jessica Vaughn, Emily G. Allen An estimated 1 in 291 women carry a Fragile X premutation (PM) and there is little evidence that [...]
By Mya Jones Authors: Rebecca C Shaffer, Debra L Reisinger, Lauren M Schmitt, Martine Lamy, Kelli C Dominick, Elizabeth G Smith, Marika C Coffman, Anna J Esbensen Summary: A large portion of individuals with Fragile [...]
Many families struggle with helping their loved ones with intellectual and developmental disabilities maintain good oral hygiene. We've pulled together some helpful resources on dentistry for families and medical professionals.
The most effective way to support someone living with FXS in any setting is to maximize their focus, cooperation, and enjoyment. Here's more on the strengths and challenges for individuals with Fragile X, and how to make the most of any experience.
This summary gives a broad overview of the main themes discussed at the Fifth International Conference on FMR1 Premutation in early 2023.
Learn more from Dr. Liz Berry-Kravis about the important updates to the Tetra trials to make participation easier!
Read and share the latest edition of the Fragile X Advocacy Newsletter with your Members of Congress offices!
Highlighting the FMR1 and Related Conditions Clinic at the Kennedy Krieger Institute, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
A Message to the Fragile X Community from, Jeffrey M. Dayno, MD, President and Chief Executive Officer of Harmony Biosciences
The FXCRC met in Denver, CO to discuss the status of treatment in Fragile X syndrome. A half-day outcome measure meeting was held with representatives from the FDA, industry, the FXCRC and families living with FXS.
Zynerba's RECONNECT trial provides flexibility for families with it's new virtual/at-home enrollment option
NFXF Sibling & Self-advocate Network hosted and organized virtual events to bring together the Fragile X community.
NFXF Connecticut Chapter hosted and organized local events to bring together the Fragile X community.
NFXF Western Massachusetts Chapter hosted and organized local events to bring together the Fragile X community.
NFXF Greater Chicago chapter hosted and organized local events to bring together the Fragile X community.
