Fragile X on the Farm
Thank you to members of the former Maryland Fragile X Resource Group for hosting a reunion, dinner on the farm, and fundraiser in support of the NFXF!
The Fragile X Clinic and Research Program at Rush University Medical Center
Highlighting the Fragile X Clinic at Rush University Medical Center, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
Aging in Fragile X Syndrome — Webinar
Dr. Berry-Kravis presents a one hour Q&A about what we’ve learned from the FORWARD data on aging for individuals living with Fragile X syndrome.
The Behavioral Neurogenetics Clinic at Stanford Medicine Children’s Health
Highlighting the Fragile X Clinic at Stanford University School of Medicine in California, a member of the National Fragile X Foundation’s Fragile X Clinical & Research Consortium (FXCRC)
My Experience at Advocacy Day
Jaleesa Holden, NFXF Communications Manager, shares her experience as a first-time advocate at NFXF Advocacy Day 2023.
Why is the RECONNECT trial with ZYN002 Being Conducted in Fragile X Syndrome?
Zynerba Pharmaceuticals shares why the RECONNECT trial with ZYN002 is being conducted in Fragile X syndrome
2023 Advocacy Day Asks
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine
Welcome Class of 2023 Board Members
Executive Director Hilary Rosselot welcomes the incoming class of 2023 Board Members. We look forward to working together to serve the entire Fragile X community.
Send a Valentine E-card to Someone Xtraordinary
Give in Honor of a Loved One this Valentine's Day! Your Valentine’s Day e-card, with artwork designed by Charlye, will spread love to someone Xtraordinary!
New Fragile X Clinic in Philadelphia
Announcing a new Fragile X clinic located at Children's Hospital Philadelphia
2023 NIH Fragile X Centers of Excellence — Webinar
Hear updates about the NIH-funded Fragile X Centers of Excellence, which support research to improve the diagnosis and treatment of Fragile X syndrome and its related conditions.
My Fragile X Advocacy Journey
NFXF Director of Community Empowerment, Missy Zolecki, shares her recent experience as a consumer reviewer for the Department of Defense Peer Reviewed Medical Research Program
NFXF Western MA Chapter Leader Makes Connections
NFXF Western Massachussets Chapter Leader Denise Devine makes connections with Fragile X community members outside her local area
5th Annual FORE! Fragile X Golf Event
The annual FORE! Fragile X golf event fundraiser, hosted by the Souder family, has been an incredibly inspiring demonstration of support. Thank you Jay, Anne and Alec - and your many supporters over the years!
New Fragile X Clinic in New Orleans
Announcing a new Fragile X clinic located at Children's Hospital New Orleans which will serve the Greater Gulf South region