Memories of Joan Canel
Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in [...]
Linda Sorensen, MS Associate Director I received an interesting phone call back in the fall of 2008. It was from Joan Canel, and she wanted to know why there wasn’t more going on in [...]
The "letter to appropriators" urging support for Fragile X funding has now been presented in the Senate by our FX champions, Senators Stabenow and Isakson. So far, none of their colleagues have signed on, but [...]
Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered.
The communications world is moving faster than ever now that you can access information right at your fingertips, whether by smartphone, tablet, or computer on your lap or your desk. That’s why the National Fragile [...]
It’s Advocacy Time Again—Fragile X Needs Your Help Today! As you all know, nearly 200 Fragile X advocates gathered in Washington, DC on March 6 to brave the snow storm that wasn’t and then hand-carry [...]
Patricia J. Heavren As long as I can remember, I’ve been on a journey to discover the extraordinary in the everyday world—especially extraordinary people, the home-grown “stars of life” with that elusive “X” factor. My [...]
The UC Davis MIND Institute reported on its website that a $3 million grant will allow their research team to investigate the effectiveness of testing procedures to examine the spoken language development of people with Fragile [...]
the Neurodevelopmental Disabilities Laboratory and Northwestern University You can help us discover more about Fragile X syndrome and the FMR1 premutation! Our research team at Northwestern University is studying language and social characteristics related [...]
“These findings suggest a possible novel therapeutic target for the treatment of Fragile X Syndrome (FXS) — the most common inherited form of autism and intellectual disability,” said Eric Klann, a professor of neural science at New York University.
The Christoff and Frey families have been involved with the Fragile X community since Mitchell Christoff was diagnosed with Fragile X syndrome at age 3 back in 2002. Mitchell turns 14 in April, he enjoys [...]
Be sure to leave a comment below to wish Robby a Happy Birthday!
As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and Fragile X syndrome (FXS) are moving closer to reality.
Before school authorities consider suspension and possible expulsion, they need to determine whether threatening someone may have been the only way that the person with Fragile X syndrome could express the gravity of their personal discomfort.
The three bills which comprised the TEAM Act began and finished the 112th Congress without ever making it to a vote. The package of bills serve the dual function of promoting the training and employment [...]
The NFXF is honored to have been asked by the John Merck Fund to help share the exciting news about two new million-dollar grants for treatment related research in Fragile X syndrome. Both grants go [...]