Press Release

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National Fragile X Foundation Launches NFXF Biobank™

FOR IMMEDIATE RELEASE contact@fragilex.org Accelerating Research into Treatments and Cures of Leading Inherited Cause of Intellectual Disability Washington, DC (February 6, 2017) – The National Fragile X Foundation (NFXF) announces the launch of the NFXF [...]

By | 2018-04-09T15:38:25+00:00 Feb 6, 2017|Press Release|Comments Off on National Fragile X Foundation Launches NFXF Biobank™

International Fragile X Alliance Launched

(Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders.

By | 2016-03-16T14:36:53+00:00 Mar 16, 2016|Press Release|Comments Off on International Fragile X Alliance Launched

National Fragile X Foundation Announces Fragile X Awareness Month 2014

The month of July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22), which is officially recognized by Congress to increase awareness and advocacy for Fragile X. Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

By | 2014-07-01T14:07:47+00:00 Jul 1, 2014|Press Release|Comments Off on National Fragile X Foundation Announces Fragile X Awareness Month 2014

Jeffrey Cohen to Lead World’s Leading Authority on Fragile X

FOR IMMEDIATE RELEASE Ted Coutilish (734) 320-7981 tcoutilish@fragilex.org www.fragilex.org (Walnut Creek, CA, October 12, 2013) The National Fragile X Foundation Board of Directors has named Jeffrey Cohen as interim executive director. “We are fortunate Jeff [...]

By | 2013-10-12T16:00:07+00:00 Oct 12, 2013|Press Release|Comments Off on Jeffrey Cohen to Lead World’s Leading Authority on Fragile X

Is Fragile X the Key to Unlocking the Mystery of Autism?

Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered.

By | 2013-04-10T12:35:17+00:00 Apr 10, 2013|Press Release|Comments Off on Is Fragile X the Key to Unlocking the Mystery of Autism?

Ground-breaking Genetic Research Gives Hope for Potential Treatment of Autism’s Core Symptoms

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and Fragile X syndrome (FXS) are moving closer to reality.

By | 2013-02-27T13:10:01+00:00 Feb 27, 2013|Advocacy, Press Release|Comments Off on Ground-breaking Genetic Research Gives Hope for Potential Treatment of Autism’s Core Symptoms

Public Health Impact of Fragile X Mutation and New Clues on Root Cause of Autism

FOR IMMEDIATE RELEASE Contact: Robert Miller 925-938-9300 robmiller@fragilex.org www.fragilex.org Recent findings regarding Fragile X are being discussed at the 13th International Fragile X Conference in Miami. These include that many of the approximately one million [...]

By | 2012-07-26T12:24:25+00:00 Jul 26, 2012|2012, Press Release|Comments Off on Public Health Impact of Fragile X Mutation and New Clues on Root Cause of Autism

Oh No They Didn’t! NFXF Launches New Website, Logo and First Brand Tagline

FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 robmiller@fragilex.org www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on Fragile X syndrome, launched its new website today. The site, fragilex.org, [...]

By | 2012-01-17T06:38:07+00:00 Jan 17, 2012|Press Release|Comments Off on Oh No They Didn’t! NFXF Launches New Website, Logo and First Brand Tagline