Press Release

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International Fragile X Alliance Launched

(Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders.

By | 2016-03-16T14:36:53+00:00 March 16th, 2016|Press Release|Comments Off on International Fragile X Alliance Launched

National Fragile X Foundation Announces Fragile X Awareness Month 2014

The month of July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22), which is officially recognized by Congress to increase awareness and advocacy for Fragile X. Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

By | 2014-07-01T14:07:47+00:00 July 1st, 2014|Press Release|Comments Off on National Fragile X Foundation Announces Fragile X Awareness Month 2014

Is Fragile X the Key to Unlocking the Mystery of Autism?

Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered.

By | 2013-04-10T12:35:17+00:00 April 10th, 2013|Press Release|Comments Off on Is Fragile X the Key to Unlocking the Mystery of Autism?

Ground-breaking Genetic Research Gives Hope for Potential Treatment of Autism’s Core Symptoms

As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and Fragile X syndrome (FXS) are moving closer to reality.

By | 2013-02-27T13:10:01+00:00 February 27th, 2013|Advocacy, Press Release|Comments Off on Ground-breaking Genetic Research Gives Hope for Potential Treatment of Autism’s Core Symptoms