The Board of the NFXF is very pleased to announce that it has named Linda Sorensen, our current Chief Operating Officer, as Acting Executive Director, effective immediately. Linda, who has been with the Foundation for [...]
FOR IMMEDIATE RELEASE firstname.lastname@example.org Accelerating Research into Treatments and Cures of Leading Inherited Cause of Intellectual Disability Washington, DC (February 6, 2017) – The National Fragile X Foundation (NFXF) announces the launch of the NFXF [...]
(Berlin/Sacramento) The International Fragile X Alliance (IFXA), a global network of Fragile X parent support organizations, was launched on February 29, 2016. IFXA will work to improve the life situation of people with the most common inherited form of intellectual disability, Fragile X Syndrome, as well as other Fragile X-associated Disorders.
The month of July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22), which is officially recognized by Congress to increase awareness and advocacy for Fragile X. Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.
FOR IMMEDIATE RELEASE Ted Coutilish (734) 320-7981 email@example.com www.fragilex.org (Walnut Creek, CA, October 12, 2013) The National Fragile X Foundation Board of Directors has named Jeffrey Cohen as interim executive director. “We are fortunate Jeff [...]
Later this spring, Congressman Greg Harper (R-MS) and the National Fragile X Foundation will host a Congressional Roundtable to explore how best to realize the full potential of these research breakthroughs linking Fragile X and autism. The White House clearly sees this potential as well, as the proposed $100 million brain mapping project will only accelerate the pace at which Fragile X and autism will be conquered.
As scientists uncover the precise links between autism and the Fragile X gene, potential treatments to reverse many of the core symptoms of both autism and Fragile X syndrome (FXS) are moving closer to reality.
FOR IMMEDIATE RELEASE Contact: Robert Miller 925-938-9300 firstname.lastname@example.org www.fragilex.org Recent findings regarding Fragile X are being discussed at the 13th International Fragile X Conference in Miami. These include that many of the approximately one million [...]
FOR IMMEDIATE RELEASE Contact: Robert Miller (925) 938-9300 email@example.com www.fragilex.org Walnut Creek, Calif. — The National Fragile X Foundation, the world’s leading authority on Fragile X syndrome, launched its new website today. The site, fragilex.org, [...]