Raise Awareness for Fragile X by Participating in the Let ’Em Know Virtual Event and Other Awareness-Building Activities in Your Local Community
July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22) that was officially recognized in 2000 by Congress to increase awareness and advocacy for Fragile X.
Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.
Carriers of the Fragile X mutation are at risk of passing it on to their children and developing conditions of Fragile X-associated tremor/ataxia syndrome (FXTAS), a Parkinson’s-like condition causing tremor, balance and memory problems in adults, and Fragile X-associated primary ovarian insufficiency (FXPOI), a condition that can result in premature menopause for women as early as their late teens.
Ways to Spread Awareness During National Fragile X Awareness Month
Participate in the National Fragile X Foundation’s Let ’Em Know Virtual 5k!
One of the easiest ways to spread awareness for Fragile X during the month of July is by participating in the NFXF’s Let ’Em Know virtual 5k.
Registrants agree to run and/or walk the 5k (3.1 miles) in the name of Fragile X. Participants can walk any time through the month of July. Many “Let ‘Em Knowers” take the opportunity to walk through their local neighborhoods and inform people about Fragile X.
Registrants receive a custom-designed, dry-fit shirt and NFXF Let ’Em Know 5k race bib.
The virtual event is on the honor system—you do not have to report or verify your miles! But we’d love to hear about your run/walk through social media. Remember, it isn’t about how fast or slow you are. It’s about what you can do to raise awareness for Fragile X and “Let ’Em Know!”
The National Fragile X Foundation, founded in 1984, is a 501(c)(3) nonprofit organization that provides informational, referral and emotional support; educational and awareness materials and activities; support for research including the translation of science into new and improved treatments; and legislative advocacy.