National Fragile X Foundation Announces Fragile X Awareness Month 2014

//National Fragile X Foundation Announces Fragile X Awareness Month 2014

National Fragile X Foundation Announces Fragile X Awareness Month 2014

FOR IMMEDIATE RELEASE
Contact: Beth Walker
248-882-3703
beth@fragilex.org
www.fragilex.org

Raise Awareness for Fragile X by Participating in the Let ‘Em Know Virtual Event and Other Awareness-Building Activities in Your Local Community.

WALNUT CREEK, CA — The month of July is National Fragile X Awareness Month, an extension of Fragile X Awareness Day (July 22), which is officially recognized by Congress to increase awareness and advocacy for Fragile X.

Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

Carriers of the Fragile X mutation are at risk of passing it on to their children and developing conditions of Fragile X-associated tremor/ataxia syndrome (FXTAS), a Parkinson’s-like condition causing tremor, balance and memory problems in adults, and Fragile X-associated primary ovarian insufficiency (FXPOI), a condition that can result in premature menopause for women as early as their late teens.

Recently, researchers have discovered a close relation between Fragile X and autism, which makes supporting Fragile X research and spreading awareness now more important than ever.

To learn more about Fragile X and the National Fragile X Foundation, visit www.fragilex.org

Ways to Spread Awareness During National Fragile X Awareness Month
  • Participate in the NFXF Let ‘Em Know virtual 5k and ask friends and family to support you!
  • Change your social media profile picture and cover to our official  National Fragile X Awareness Month logo.
  • Share our daily Fragile X Facts on Facebook, Twitter, Instagram, Pinterest and more.
  • Create your own Fragile X Awareness Month event to inform your community.
  • Donate to the NFXF to help support its mission to create awareness and support research towards improved treatments and a cure for Fragile X.
  • Print copies of the Fragile X Awareness Month flyer and display it at work, the gym or on a bulletin board in your community!
Participate in the National Fragile X Foundation’s Let ‘Em Know Virtual 5k!

One of the easiest ways to spread awareness for Fragile X during the month of July is by participating in the NFXF’s Let ‘Em Know virtual 5k.

Registrants agree to run and/or walk the 5k (3.1 miles) in the name of Fragile X. Participants can walk any time through the month of July. Many “Let ‘Em Knowers” take the opportunity to walk through their local neighborhoods and inform people about Fragile X.

Registrants receive a custom-designed, dry-fit shirt and NFXF Let ’Em Know 5k race bib.

The virtual event is on the honor system—you do not have to report or verify your miles! But we’d love to hear about your run/walk through social media. Remember, it isn’t about how fast or slow you are. It’s about what you can do to raise awareness for Fragile X and “Let ’Em Know!”

The National Fragile X Foundation, founded in 1984, is a 501(c)(3) nonprofit organization that provides informational, referral and emotional support; educational and awareness materials and activities; support for research including the translation of science into new and improved treatments; and legislative advocacy. More information is available at www.fragilex.org.

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By | 2014-07-01T14:07:47+00:00 Jul 1, 2014|Press Release|Comments Off on National Fragile X Foundation Announces Fragile X Awareness Month 2014