Registration is now open National Fragile X Advocacy Day is March 4-5, 2014. Let your voice be heard in the halls of Congress. Online Registration Full details can be found online at fxadvocacy.fragilex.org. We hope [...]
We are searching for men who are carriers of the Fragile X premutation between the ages of 40 and 69 to participate in a longitudinal UC Davis research project, studying changes in brain and cognition associated with aging. For men who have not yet been tested, FMR1 DNA testing is completed to help determine eligibility for the study.
Lindsey Stobie, Masters candidate in the Genetic Counseling Program at Brandeis University Do you have a daughter with Fragile X syndrome? I am a graduate student in the Genetic Counseling Program at Brandeis University. [...]
As this year rushes to a close, I want to take a moment to tell you how grateful I am to be a part of the Fragile X community. I’ve learned so much from each of you – your determination, your commitment and your passion to make the lives of your families the best they can be is my daily inspiration....
Saturday, November 16 was all about raising awareness and funds across Texas! The Texas Fragile X Association (Dallas/FT Worth) the Fragile X Alliance of Texas – Houston, the Fragile X Alliance of Texas – San Antonio all hosted a walk!
We are proud to announce that Charity Navigator has awarded us the prestigious rating of 4 Stars. That's the highest possible rating from America's Largest Charity Evaluator. The goal of the Charity Navigator is to [...]
This Thanksgiving we want you to know that we are extraordinarily grateful to you for making our work possible. Thank you! We'd love to see your posts on "thankfulness" on our Facebook page!
I'm very excited to share this short video I recorded recently thanks to the generosity of our friends at the Giving Library. In it, I talk about how Fragile X affects our lives and the ways the National Fragile X Foundation has helped make a world of difference to many families, including mine. I hope you'll take the time to watch it and share it with your family and friends.
Have you ever wished you could organize a fundraiser, but thought the the work would be more than you could handle? So did Marie Horowitz and Janet Armetta until they found a partner in Applebee’s Restaurants. Applebee’s Flapjack Fundraiser program.....
Photo courtesy of Autism Speaks The National Institutes of Health has awarded a major grant to conduct a clinical trial on iPad Assisted Language Development. An Autism Speaks funded study reported encouraging findings on [...]
My whole marriage to my husband Vince can be described by one acronym: FXTAS. Our wedding was in April 1999. It was a second marriage for us both, and we weren’t youngsters (I was 48 and Vince was 64), but I thought we were both healthy. We had no inkling that Vince’s mind was already deteriorating from FXTAS.
Roche We are studying an experimental medication for Fragile X syndrome in children and adolescents. We hope to learn if this experimental medication is safe, how well your body manages the medication (tolerability), how [...]
Blueprint for Success sets the new mission statement for Massachusetts' Employment for Individuals with Disabilities As part of the Collaboration to Promote Self-Determination, one of the issues that we at the NFXF have [...]
Contact: Mark Derewicz firstname.lastname@example.org (919) 923-0959 University of North Carolina Health Care CHAPEL HILL, N.C. – When you experience something, neurons in the brain send chemical signals called neurotransmitters across synapses to receptors on other [...]
Individual commitment to a group effort—that is what makes a team work, a company work, a civilization work. The backs of sixty-three T-shirts bore this quote at the NFXF LINKS Leadership Summit in [...]