• rocheWe are studying an experimental medication for Fragile X syndrome in children and adolescents.
  • We hope to learn if this experimental medication is safe, how well your body manages the medication (tolerability), how much medication is in your body (pharmacokinetics) and if it works on symptoms of Fragile X Syndrome.
  • Children and adolescents with Fragile X Syndrome (between 5 and 17 years of age) may participate.
  • Costs for travel, accommodations, and food for clinic visits will be reimbursed.

Please contact your local research center to receive more information or to ask any questions.
A list of participating research centers is attached for your reference.

Lisa Thompson Craft MD
Recruiting Age Group: Ages 5-17
University of Louisville Research Foundation, Inc
231 E Chestnut St, N-97 East
Kosair Charities Pediatric Clinical Research Unit
Louisville, KY 40202
Study Coordinator: Carrie Schanie
Phone: 502-629-5820
Email: clscha01@louisville.edu

Shivkumar Hatti MD, MBA
Recruiting Age Group: Ages 5-17
Suburban Research Associates
107 Chesley Drive; Unit 4
Media, PA 19063
Study Coordinator: Maureen O’Donnell
Phone: 610-891-9024 x104

Bryan King MD
Recruiting Age Group: Ages 5-17
Seattle Children’s Research Institute
2001 8th Avenue
Suite 400 Psychiatry & Behavioral Medicine
Seattle, WA 98121
Study Coordinator: Denise Ward
Phone: 206-987-1837

Michael McManus MD
Recruiting Age Group: Ages 5-13
PCSD – Feighner Research
1550 Hotel Circle North
Suite 450
San Diego, CA 92108
Study Coordinator: Melissa Orr
Phone: 619-692-1003

Raun Melmed MD
Recruiting Age Group: Ages 14-17
Southwest Autism Research & Resource Center (SARRC Research)
2225 N 16th Street
Phoenix, AZ 85006
Study Coordinator: Amanda Akdere
Phone: 480-603-3285
Email: aakdere@autismcenter.org

Steven Skinner MD
Recruiting Age Group: Ages 5-13
Greenwood Genetic Center
106 Gregor Mendel Circle
Greenwood, SC 29646
Study Coordinator: Fran Annese
Phone: 864-941-8100
Email: fran@ggc.org

Jerry Tomasovic MD
Recruiting Age Group: Ages 5-17
Road Runner Research
525 Oak Centre Dr, Suite 400
San Antonio, TX 78258
Study Coordinator: Kathryn Johanningmeier
Phone: 210-949-0505
Email: kjohanningmeier@rrresearchsa.com

Sinan Turnacioglu MD
Recruiting Age Group: Ages 5-17
Children’s National Medical Center
111 Michigan Ave NW, Neurology
Washington, DC 20010
Study Coordinator: Jurran Wilson
Phone: 301-765-5423
Email: JuWilson@childrensnational.org