Tag: NFXF Advocacy Day

Another Advocacy Day in the Books

Advocacy Day 2018 Group with Rep. Gregg Harper

This Tuesday, more than 150 National Fragile X Foundation volunteers representing 27 states traveled to Washington, DC for NFXF Advocacy Day. In 130 meetings, our parents, grandparents, siblings, aunts, uncles, cousins, friends, professionals, and – most important of all – self-advocates, spoke with members of Congress on behalf of the Fragile X community. Our efforts

NFXF Advocacy Day

NFXF Advocacy Day Group Photo

March 5-6, 2018 On National Fragile X Foundation Advocacy Day, held every March, members of the Fragile X community descend on Capitol Hill to relate their stories about Fragile X-associated Disorders, their families, and policies that support Fragile X families, such as health insurance, research at the NIH and DOD, research and public health programs