Exploring Parents’ Concerns Regarding Long-Term Support and Living Arrangements for Their Children with Fragile X Syndrome

By |2023-05-15T12:51:14-04:00Oct 25, 2022|Blog, Research, Research Results|

Given the limited data regarding future planning specific to individuals with Fragile X Syndrome (FXS) and the growing population of this community, this study sought to explore the concerns and challenges caregivers of individuals affected by FXS encounter when considering long-term support plans.

The Brothers Who Bake D&J Doggie Delights

By |2022-08-02T19:18:54-04:00Jun 8, 2022|Blog|

Meet David and Jason who together bake and sell dog treats. But that's not their only job: David works as a stocker at a grocery store and paints and exhibits his work at a local gallery. Jason works as a dishwasher and cart attendant and loves to swim.

An Xtraordinary Employee: Corey Gershenson

By |2022-08-02T19:17:16-04:00Feb 25, 2022|Blog|

Corey Gershenson lives with Fragile X syndrome. Thanks to his determination — and employers willing to embrace employees with disabilities — he also works two jobs and volunteers at Mercy Hospital in St. Louis.

An Xtraordinary Employee: Clay

By |2022-08-02T19:21:56-04:00Oct 19, 2021|Blog|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

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