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As part of our continuing public policy activities, we have been monitoring the incremental implementation of the Affordable Care Act (ACA). Many of you know that the Act is currently under review by the Supreme [...]
Despite the fact that we're now 7 weeks into fiscal year 2012 the budget for 2012 that impacts FX research and programming (CDC, NIH, DOD) remains unfinished. There was a slim chance that it would [...]
The 8th Annual Hadley Corn Hole Championship, organized by the Western Massachusetts Fragile X chapter on March 3, 2024, marked a day of camaraderie, spirited competition, and impactful fundraising.
Please join us and our guest, David Hessl, PhD, at the next webinar in our Lunch & Learn Series on May 9, 2024, at 3 PM ET/ 12 PM PT.
The University of Kansas BRAIN Lab is conducting a research study to learn about behavioral and brain differences associated with the Fragile X premutation. Males and females ages 50-80 living with the Fragile X premutation, with or without FXTAS, may be eligible to participate. The study includes remote & in-person visits at the University of Kansas.
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
The Greater Chicago Fragile X chapter families gathered on a sunny day in November to support the Brookfield Zoo and its annual Tree Trim event, and to raise awareness for Fragile X families everywhere.
The NFXF has continually adapted to the times when it comes to the best ways to communicate with the Fragile X community.
Join the NFXF Greater Chicago Chapter for a Sensory-Friendly morning at Lincoln Park Zoo.
Join us for an informational webinar about funding opportunities for FY24 on April 10th at 12pm ET with the Program Manager for the Peer Reviewed Medical Research Program (PRMRP).
