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17 12, 2014

ABLE ACT Passes Senate

By |2014-12-17T08:31:13-05:00Dec 17, 2014|2015, Advocacy, Advocacy Day|Comments Off on ABLE ACT Passes Senate

WASHINGTON, D.C. – Culminating a nearly eight year effort spanning four sessions of Congress the ABLE Act passed the Senate late Tuesday night with a vote of 76-16. The bill overwhelmingly earlier this [...]

3 12, 2014

ABLE Passes House

By |2014-12-03T14:59:03-05:00Dec 3, 2014|Advocacy|Comments Off on ABLE Passes House

Eight Years of Hard Work by Advocates, One Step Closer to Reality Today the U.S. House of Representatives passed the Achieving A Better Life Experience Act. NFXF advocates have been urging their members of Congress to [...]

7 04, 2014

New Test Makes Parkinson's-like Disorder of Middle Age (FXTAS) Detectable in Young Adulthood

By |2014-04-07T11:54:52-04:00Apr 7, 2014|FXTAS, News Reports and Commentaries|Comments Off on New Test Makes Parkinson's-like Disorder of Middle Age (FXTAS) Detectable in Young Adulthood

The very earliest signs of a debilitating neurodegenerative disorder, in which physical symptoms are not apparent until the fifth decade of life, are detectable in individuals as young as 30 years old using a new, [...]

24 05, 2012

Online Survey: Usage of Tablet App Technology by Individuals with Fragile X Syndrome

By |2012-05-24T11:56:12-04:00May 24, 2012|Opportunities for Families|Comments Off on Online Survey: Usage of Tablet App Technology by Individuals with Fragile X Syndrome

Laurie Yankowitz, EdD, and Vicki Sudhalter, PhD Has app technology made a qualitative difference for your affected family member? Please help us share valuable information about use of app technology by individuals with Fragile [...]

25 04, 2012

The Conference Agenda is Now Available

By |2012-04-25T12:43:19-04:00Apr 25, 2012|2012|Comments Off on The Conference Agenda is Now Available

The preliminary agenda for the 13th International Fragile X Conference is now available for viewing. This agenda contains the presentation titles, speakers and times scheduled at the conference. Note: Topics, times [...]

25 04, 2012

National Call-In Day in Support of the ABLE Act , Wednesday April 25, 2012

By |2012-04-25T10:26:13-04:00Apr 25, 2012|Action Alert, Advocacy|Comments Off on National Call-In Day in Support of the ABLE Act , Wednesday April 25, 2012

The National Fragile X Foundation is co-hosting National Achieving a Better Life Experience (ABLE) Act Call-In Day on Wednesday, April 25, along with Autism Speaks, National Down Syndrome Society, Muscular Dystrophy Association, NDSC, and several [...]

12 04, 2012

A Letter to Implement the Affordable Care Act

By |2012-04-12T10:03:35-04:00Apr 12, 2012|Advocacy|Comments Off on A Letter to Implement the Affordable Care Act

As part of our continuing public policy activities, we have been monitoring the incremental implementation of the Affordable Care Act (ACA). Many of you know that the Act is currently under review by the Supreme [...]

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