Fragile X Info Series: An Overview for Kids of All Ages
Fragile X Info Series An Overview For Kids of All Ages Help kids who don’t have Fragile X syndrome understand what it is and how they can be [...]
27
10, 2020
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29
07, 2020
Getting Comfortable Wearing a Mask
Real-life tips from a mom, Jayne Dixon Weber, who’s already going through this with her own son, plus a a quick video from Rebecca Shaffer to guide you through the process of getting your child comfortable wearing a mask.
30
05, 2020
Join the NFXF 2020 Virtual Graduation Celebration
Join the NFXF as we celebrate your graduation virtually, with special guest speaker Mr. Gregg Harper. Deadline: June 4, 2020.
12
05, 2020
American Idol’s Sophia James Introduces Her Brother James — Who Has FXS — to 8 Million Viewers
American Idol contestant Sophia James (formerly Wackerman) introduces her brother James, who has Fragile X syndrome, to more than 8 million viewers. Sophia took to social media to help spread awareness and advocate for Fragile X.
10
04, 2020
COVID-19 Resources for Fragile X Families and Individuals
COVID-19 Resources for Fragile X Families and Individuals The most common behavioral challenges seen in FXS include behaviors associated with generalized anxiety, social interaction difficulties — including social anxiety/withdrawal and social aloofness — ADHD, [...]
1
04, 2020
My Child Is Home… Now What? Managing Behavior
In this webinar, Rebecca Shaffer walks us through what your child is telling you, strategies to prevent the behavior, reinforcing good behaviors, and building new skills.
25
03, 2020
My Child is Home… Now What? Keeping a Routine — Webinar
In this webinar, Rebecca Shaffer guides us through the importance of having a routine, including providing predictability and lowering anxiety, and how to create and build your own for you and your child.
11
10, 2019
What a successful year for NFXF Advocates
NFXF Advocates have had a very successful year! Our advocacy efforts focus on ensuring substantial federal investments in Fragile X research, policies that create opportunities for those living with Fragile X to have the best possible life, and an awareness in Congress of Fragile X. Here are some highlights of our efforts this year.
29
07, 2019
Fragile X Advocacy – August Recess Visits
For the third year in a row, we are partnering with Rare Disease Legislative Advocates, a project of the EveryLife Foundation, to schedule Fragile X advocacy meetings with members of Congress and their staff during the August recess. Here is what you need to know.
9
07, 2019
This Is Fragile X
This is Fragile X For July 2019, which is Fragile X Awareness Month, we asked parents, caregivers, friends, relatives, researchers, doctors, educators - well, you get the idea - to share posts about Fragile [...]