2023 Advocacy Day Asks
NFXF Advocates head to Capitol Hill to ask for ongoing federal funding for Fragile X research and legislation to support telemedicine
24
02, 2023
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1
11, 2022
Gregg Harper Reminds Us of the Importance of Year-Round Advocacy
Former Congressman and Fragile X Dad, Gregg Harper Reminds Us of the Importance of Year-Round Advocacy.
7
01, 2022
30
09, 2021
Newly Diagnosed
Newly Diagnosed We are here to help you. When you’re ready, there is a whole community that understands what you’re going through, and will be here to provide guidance and support throughout your [...]
9
02, 2021
Advocacy Day Social Story
Our own Jayne Dixon Weber pulled together a social story to use to help you and your self-advocate prepare for the NFXF Advocacy Day on February 24, 2021.
20
01, 2021
Fragile X Info Series: Siblings
Fragile X Info Series Fragile X Siblings Counseling for siblings not affected by FXS may be as important as for those who are affected. ENGLISH SPANISH [...]
4
01, 2021
Fragile X Info Series: Females and Fragile X
Fragile X Info Series Females and Fragile X Females and Fragile X, including physical, cognitive, behavioral, and emotional issues associated with the mutation, and the differences when compared [...]
16
12, 2020
Fragile X Advocacy in 2021
Gregg Harper discusses NFXF advocacy successes from 2020, 2021 Advocacy Day, and more.
8
12, 2020
Fragile X Info Series: An Overview for Families and Providers
Fragile X Info Series An Overview for Families & Providers An easy-to-understand summary to share with friends, family, and professionals. ENGLISH SPANISH [...]
12
11, 2020
NFXF Research Readiness Program
NFXF Research Readiness Program Our mission has always been and continues to be providing unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure. As a patient advocacy organization [...]