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9 05, 2018

Supporting DOD Research for Fragile X

By | 2018-05-09T14:49:15+00:00 May 9, 2018|Advocacy, Research|Comments Off on Supporting DOD Research for Fragile X

...programs at DoD directly impact the health and lives of the U.S. military, their families, veterans and the public. Programs provide groundbreaking research on psychological health, Gulf War Illness, spinal...

1 03, 2018

Fragile X Research at the DOD

By | 2018-03-01T10:55:45+00:00 Mar 1, 2018|Advocacy, Research|Comments Off on Fragile X Research at the DOD

...with coalition partners to raise awareness of Fragile X and the importance of the DOD CDMRP. We say Together, We’re Stronger, because, as Fragile X families, we are stronger together....

29 05, 2017


By | 2019-07-19T15:20:16+00:00 May 29, 2017|Comments Off on Advocacy research at the NIH and DOD, research and public health programs at the CDC, ABLE accounts for savings, facilitating the use of potential new drugs for treatments and a...

28 02, 2019

NFXF Advocacy Day – Another Success

By | 2019-02-28T13:51:49+00:00 Feb 28, 2019|Advocacy|Comments Off on NFXF Advocacy Day – Another Success the NIH, CDC, and DOD. These are hometown voices relaying how their support of research makes a real difference for their constituents. We received positive interest from both sides...

23 05, 2017

Our Team

By | 2019-07-12T11:49:12+00:00 May 23, 2017|Comments Off on Our Team

...senior strategist for communication initiatives across the DOD. He loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer. [vc_custom_heading text=”Missy...

29 09, 2014

Warm Up for NFXF Advocacy Day 2015

By | 2014-09-29T16:19:36+00:00 Sep 29, 2014|2015|Comments Off on Warm Up for NFXF Advocacy Day 2015

...ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still...

9 02, 2017

The 'Asks' for NFXFAD2017

By | 2017-02-09T10:24:47+00:00 Feb 9, 2017|Advocacy Day|Comments Off on The 'Asks' for NFXFAD2017

...asks for continued funding of Fragile X research and programming by the NIH, CDC and DoD in the next budget year. It was drafted with our champions: House Reps. Harper...

23 02, 2012

Public Policy Is for People!

By | 2012-02-23T20:41:55+00:00 Feb 23, 2012|Advocacy|Comments Off on Public Policy Is for People!

...“consumer reviewer” to evaluate Fragile X research proposals for the DOD. It’s an honor and inspiration to be involved. – Andy Selinger Experiences like Andy’s let the entire Fragile X...

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