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9 05, 2018

Supporting DOD Research for Fragile X

By |2018-05-09T14:49:15-04:00May 9, 2018|Advocacy, Research|Comments Off on Supporting DOD Research for Fragile X

Several years ago, NFXF Advocates were successful in adding Fragile X research to the Department of Defense's Congressional Directed Medical Research Program (CDMRP) list of authorized research areas. Each year, the NFXF advocates for continuation »

29 05, 2017

Advocacy

By |2020-07-31T15:48:23-04:00May 29, 2017|Comments Off on Advocacy

On National Fragile X Foundation leads an advocacy program to advance research funding for Fragile X and programs to provide better lives and opportunities for individuals living »

1 03, 2018

Fragile X Research at the DOD

By |2018-03-01T10:55:45-05:00Mar 1, 2018|Advocacy, Research|Comments Off on Fragile X Research at the DOD

Thanks to the hard work of NFXF Advocates years ago, Fragile X is one of the authorized research areas at the Department of Defense's Congressionally Directed Medical Research Program (DOD CDMRP). Millions of dollars in »

20 11, 2019

NFXF Advocacy Day

By |2020-07-29T08:38:01-04:00Nov 20, 2019|Comments Off on NFXF Advocacy Day

NFXF Advocacy Day The National Fragile X Foundation leads an advocacy program to advance research funding for Fragile X and programs to provide better lives and opportunities for individuals living with Fragile X and other »

23 05, 2017

Our Team

By |2020-10-01T13:51:49-04:00May 23, 2017|Comments Off on Our Team

Meet Our Team Linda has been a member of the NFXF team since 2004. She has over 25 years of experience in non-profit programs, operations management, board and volunteer development. »

23 02, 2012

Public Policy Is for People!

By |2012-02-23T20:41:55-05:00Feb 23, 2012|Advocacy|Comments Off on Public Policy Is for People!

"Public Policy Is for People!" reflects a fundamental truth about the legislative advocacy efforts we pursue at the National Fragile X Foundation. Yes, "public policy" may sound like a forgettable chapter in your high school »

29 09, 2014

Warm Up for NFXF Advocacy Day 2015

By |2014-09-29T16:19:36-04:00Sep 29, 2014|2015|Comments Off on Warm Up for NFXF Advocacy Day 2015

ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still refuses to allow debate on KASS, and »

24 03, 2016

Advocacy Update: Advocacy Day 2016 and Fragile X Research Funding

By |2016-03-24T14:00:48-04:00Mar 24, 2016|2016, Advocacy|Comments Off on Advocacy Update: Advocacy Day 2016 and Fragile X Research Funding

On March 2-3, 2016 the NFXF held its 13th Annual Advocacy Day in Washington, D.C. It was a resounding success was attended by 150 advocates from 30 states. This included a record number of siblings and self-advocates who have rapidly become some of the most enthusiastic and impactful advocates for Fragile X.

9 02, 2017

The 'Asks' for NFXFAD2017

By |2017-02-09T10:24:47-05:00Feb 9, 2017|Advocacy Day|Comments Off on The 'Asks' for NFXFAD2017

In preparation for the National Fragile X Foundation's Advocacy Day 2017, we are publishing initial details on our "asks" for this year's meetings. It is our goal to provide each advocate ample time to prepare, in an effort to ease anxiety related to the day. Our asks, as always, are bipartisan and reflect the best interests of our community. Personal politics have no place in Advocacy Day so we hope each of you will come to Washington, DC prepared to share your story and fight for the needs of all those living with Fragile X.

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