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Supporting DOD Research for Fragile X

By | 2018-05-09T14:49:15+00:00 May 9, 2018|Advocacy, Research|

...programs at DoD directly impact the health and lives of the U.S. military, their families, veterans and the public. Programs provide groundbreaking research on psychological health, Gulf War Illness, spinal...

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Fragile X Research at the DOD

By | 2018-03-01T10:55:45+00:00 Mar 1, 2018|Advocacy, Research|

...with coalition partners to raise awareness of Fragile X and the importance of the DOD CDMRP. We say Together, We’re Stronger, because, as Fragile X families, we are stronger together....

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Advocacy

By | 2019-03-18T15:16:33+00:00 May 29, 2017|

...as research at the NIH and DOD, research and public health programs at the CDC, ABLE accounts for savings, facilitating the use of potential new drugs for treatments and a...

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NFXF Advocacy Day – Another Success

By | 2019-02-28T13:51:49+00:00 Feb 28, 2019|Advocacy|

...at the NIH, CDC, and DOD. These are hometown voices relaying how their support of research makes a real difference for their constituents. We received positive interest from both sides...

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Our Team

By | 2019-03-05T17:23:52+00:00 May 23, 2017|

...senior strategist for communication initiatives across the DOD. He loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer. [vc_custom_heading text=”Missy...

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Warm Up for NFXF Advocacy Day 2015

By | 2014-09-29T16:19:36+00:00 Sep 29, 2014|2015|

...ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still...

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The 'Asks' for NFXFAD2017

By | 2017-02-09T10:24:47+00:00 Feb 9, 2017|Advocacy Day|

...asks for continued funding of Fragile X research and programming by the NIH, CDC and DoD in the next budget year. It was drafted with our champions: House Reps. Harper...

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Public Policy Is for People!

By | 2012-02-23T20:41:55+00:00 Feb 23, 2012|Advocacy|

...“consumer reviewer” to evaluate Fragile X research proposals for the DOD. It’s an honor and inspiration to be involved. – Andy Selinger Experiences like Andy’s let the entire Fragile X...

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