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9 05, 2018

Supporting DOD Research for Fragile X

By | 2018-05-09T14:49:15+00:00 May 9, 2018|Advocacy, Research|Comments Off on Supporting DOD Research for Fragile X

...programs at DoD directly impact the health and lives of the U.S. military, their families, veterans and the public. Programs provide groundbreaking research on psychological health, Gulf War Illness, spinal...

1 03, 2018

Fragile X Research at the DOD

By | 2018-03-01T10:55:45+00:00 Mar 1, 2018|Advocacy, Research|Comments Off on Fragile X Research at the DOD

...with coalition partners to raise awareness of Fragile X and the importance of the DOD CDMRP. We say Together, We’re Stronger, because, as Fragile X families, we are stronger together....

29 05, 2017

Advocacy

By | 2019-11-25T09:15:27+00:00 May 29, 2017|Comments Off on Advocacy

...as research at the NIH and DOD, research and public health programs at the CDC, ABLE accounts for savings, facilitating the use of potential new drugs for treatments and a...

20 11, 2019

NFXF Advocacy Day

By | 2019-11-25T09:27:18+00:00 Nov 20, 2019|Comments Off on NFXF Advocacy Day

...about Fragile X-associated disorders, their families, and policies that support Fragile X families such as research at the NIH and DOD, research and public health programs at the CDC, ABLE...

28 02, 2019

NFXF Advocacy Day – Another Success

By | 2019-02-28T13:51:49+00:00 Feb 28, 2019|Advocacy|Comments Off on NFXF Advocacy Day – Another Success

...at the NIH, CDC, and DOD. These are hometown voices relaying how their support of research makes a real difference for their constituents. We received positive interest from both sides...

29 07, 2019

Fragile X Advocacy – August Recess Visits

By | 2019-07-29T09:55:56+00:00 Jul 29, 2019|Advocacy|Comments Off on Fragile X Advocacy – August Recess Visits

...summarizes our asks. Download it here. Background. This sheet is for your use to help you understand the asks and the strategy. Download it here. Senate DOD Research Letter. If...

23 05, 2017

Our Team

By | 2019-11-08T16:33:36+00:00 May 23, 2017|Comments Off on Our Team

...senior strategist for communication initiatives across the DOD. He loves spending time with his family and friends and dreams of either being an artisan woodworker or comedy writer. [vc_custom_heading text=”Missy...

23 02, 2012

Public Policy Is for People!

By | 2012-02-23T20:41:55+00:00 Feb 23, 2012|Advocacy|Comments Off on Public Policy Is for People!

...“consumer reviewer” to evaluate Fragile X research proposals for the DOD. It’s an honor and inspiration to be involved. – Andy Selinger Experiences like Andy’s let the entire Fragile X...

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