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PureTech Health has been awarded a DOD grant of up to $11.4 million from the DOD for their trial of LYT-300, oral formulation of allopregnanolone, in people with Fragile X-associated tremor/ataxia syndrome (FXTAS).
Several years ago, NFXF Advocates were successful in adding Fragile X research to the Department of Defense's Congressional Directed Medical Research Program (CDMRP) list of authorized research areas. Each year, the NFXF advocates for continuation [...]
Thanks to the hard work of NFXF Advocates years ago, Fragile X is one of the authorized research areas at the Department of Defense's Congressionally Directed Medical Research Program (DOD CDMRP). Millions of dollars in [...]
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
Join us for an informational webinar about funding opportunities for FY24 on April 10th at 12pm ET with the Program Manager for the Peer Reviewed Medical Research Program (PRMRP).
Announcing FY 2024 federal research funding opportunities across six award categories available for all Fragile X-associated conditions and disorders.
This summary gives a broad overview of the main themes discussed at the 5th International Conference on FMR1 Premutation in early 2023.
The 19th International Fragile X Conference (2024) is happening July 25-28, 2024 at Renaissance Sea World in Orlando.
Jaleesa Holden, NFXF Communications Manager, shares her experience as a first-time advocate at NFXF Advocacy Day 2023.
Dr. Kathryn Argue share tips for applying for PRMRP funding with Fragile X professionals.
