Search results for: ABLE

Home/Search: ABLE

Need a new search?

If you didn't find what you were looking for, try a new search!

12 04, 2017

NFXF Advocacy Update: The ABLE Act and More

By |2017-04-12T17:11:53-04:00Apr 12, 2017|Advocacy|Comments Off on NFXF Advocacy Update: The ABLE Act and More

Congress is moving forward on our two key asks: Reps. Harper and Engel have sent their cosigned letter to the House Appropriations Committee asking for support for research at [...]

24 06, 2017

The Fragile X Clinic: What Does It Mean For You?

By |2018-09-26T15:32:11-04:00Jun 24, 2017|Comments Off on The Fragile X Clinic: What Does It Mean For You?

[title title="The Fragile X Clinic: What Does It Mean For You?"] At our clinic in Boston we often hear families ask why they should go to a Fragile X clinic if they are happy with [...]

8 07, 2016

Nebraska Launches the ENABLE National Program

By |2016-07-08T08:21:20-04:00Jul 8, 2016|Keeping You Informed|Comments Off on Nebraska Launches the ENABLE National Program

The National Fragile X Foundation is pleased to announce that the state of Nebraska has now launched its version of an Achieving A Better Life Experience (ABLE) account. Known as the “ENABLE” national program, it offers enrollment to qualified individuals with disabilities both in Nebraska and throughout the country.

4 06, 2018

Genetic Counseling and Family Support Consensus Document

By |2018-06-05T09:28:03-04:00Jun 4, 2018|Comments Off on Genetic Counseling and Family Support Consensus Document

Author note: This guideline was authored by Liane Abrams, MS, CGC, Sharyn Lincoln, MS, CGC, Brenda Finucane, MS, CGC, and Susan Howell, MS. CGC and reviewed and edited by consortium members both within and external to [...]

23 05, 2017

Webinars

By |2019-10-18T13:55:02-04:00May 23, 2017|Comments Off on Webinars

We offer free webinars to address some of the most frequently asked questions about Fragile X. Experts offer tips and other information you need to know. Family members, caregivers, and professionals are [...]

1 06, 2017

Newly Diagnosed

By |2019-07-22T20:20:21-04:00Jun 1, 2017|Comments Off on Newly Diagnosed

For many families when getting a diagnosis of Fragile X syndrome (FXS), Fragile X associated primary ovarian insufficiency (FXPOI) or  Fragile X associated tremor ataxia syndrome (FXTAS), this is the first time [...]

29 09, 2014

Warm Up for NFXF Advocacy Day 2015

By |2014-09-29T16:19:36-04:00Sep 29, 2014|2015|Comments Off on Warm Up for NFXF Advocacy Day 2015

ABLE Act hits all-time high 380 co-sponsors, appropriation injects $150 million into DOD and PRMRP, NFXF asked to nominate additional peer reviews to the PRMRP, Rep. Klein still refuses to allow debate on KASS, and [...]

18 11, 2011

Washington Update – ABLE Act & Budgets

By |2011-11-18T10:34:48-05:00Nov 18, 2011|2012|Comments Off on Washington Update – ABLE Act & Budgets

Despite the fact that we're now 7 weeks into fiscal year 2012 the budget for 2012 that impacts FX research and programming (CDC, NIH, DOD) remains unfinished. There was a slim chance that it would [...]

23 04, 2019

Best Practices in Fragile X Syndrome Treatment Development

By |2019-04-24T10:49:35-04:00Apr 23, 2019|Comments Off on Best Practices in Fragile X Syndrome Treatment Development

Best Practices in Fragile X Syndrome Treatment Development By Craig A. Erickson, Walter E. Kaufmann, Dejan B. Budimirovic, Ave Lachiewicz, Barbara Haas-Givler, Robert M. Miller, Jayne Dixon Weber, Leonard Abbeduto, David Hessl, Randi J. [...]

Load More Posts