My Grandson – Hayden Makris
My grandson - Hayden inspires me each and every day. When I feel like I can't do another thing I think of him and how each day for him is a struggle. He greets every [...]
A Fragile X Story
My name is Lara Bailey and I have Fragile X. My carrier status is that I am a mosaic. I have both the full mutation and the pre-mutation. It was passed down from my mother's [...]
4 brothers 3 with Fragile X
I really don't know the story that well, my mom could probably share it better, but i wanted to tell it. My mom is the eldest of 4 brothers also the only one that doesn't [...]
Elise, 8 yrs old
Elise is 8 years old and full of life!! She is happy, bright and kind. Elise continues to thrive on her own and with educational/social intervention as needed. She takes her role as sister, cousin, [...]
Mick Phelps
Our son Mick was diagnosed with FXS a year ago, just before his 2nd birthday. I had never heard of FXS nor was I aware that I carried the gene. Mick is the youngest of [...]
Pride and joy
I have 2 grandsons with Fragile X. I'm so very proud of them. PJ just graduated from 8th grade and will be going into high school. Hunter will be going into the 8th grade. They [...]
Dylan Ray Gillis
Dylan was diagnosed when he was 3 1/2 years old with Fragile X Syndrome, today he 20 years old. He graduated with the Class of 2010 from Choctaw High School, in Choctaw Oklahoma. He loves [...]
Sweet Caroline
Our Sweet Caroline is now 8 yrs. old and amazing! She has a smile that lights up a room. She has a passion for life that many envy. Her joy is contagious. She told me [...]