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Blog Home Page (News)2021-04-19T13:28:07-04:00

The NFXF Blog

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Why Laurie, Will, and Caroline Bridges Support the NFXF

By |Dec 13, 2021|

The Bridges have been supporting the Fragile X community for years. They took a few minutes this month to tell you why and encourage you to join them in supporting the work of the National Fragile X Foundation this month. Hear what they have to say.

How to Create a Facebook Fundraiser

By |Nov 14, 2021|

In this video, learn how to set up your fundraising page and link it to a parallel Facebook fundraising page. This connection has been a game-changer in helping to maximize fundraising efforts.

It’s All About Employ-Ability!

By |Nov 12, 2021|

Paula Fasciano and friends opened Bake Ability so they could give employment opportunities to individuals with intellectual and developmental disabilities.

An Xtraordinary Employee: Clay

By |Oct 19, 2021|

A concern for parents of children with Fragile X syndrome is their level independence as an adult. This is Clay and his mother June's story.

Understanding a Fragile X Intermediate Result

By |Oct 15, 2021|

Adult neurologists and reproductive specialists increasingly recommend Fragile X testing, as awareness has grown about FXTAS and FXPOI. Fragile X carrier testing during pregnancy has also become relatively commonplace in the US and elsewhere, even for women without a family history suspicious for Fragile X disorders.

8 Employee Attributes to Teach Your Young Adult

By |Oct 13, 2021|

Getting a new job is exciting, but young adults with Fragile X syndrome need to also understand what's expected of them at a workplace. Help them prepare by first understanding these eight guidelines.

Clinical Trial RECONNECT: ZYN002 Gel

By |Oct 7, 2021|

This study will evaluate the efficacy and safety of ZYN002, a clear gel that can be applied to the skin (called transdermal application) twice a day for the treatment of behavioral symptoms of Fragile X syndrome (FXS).