It’s that time of year! Join other rare disease advocates for in-district meetings with your Congress members and staff. You still have time to register↗.
Many of you have participated the past few years in in-district meetings with your members of Congress and their staff. These were all scheduled with our partner the Rare Disease Legislative Advocates (RDLA).
This year, we are planning both in-person and virtual meetings. All U.S. House of Representatives meetings will be in-person only. All Senate meetings will be virtual only. Advocates can choose to do both the in-person meeting with their representative and the virtual meetings with their senators.
RDLA organizes all the meetings and helps you prepare by providing legislative resource materials and hosting pre-meeting training webinars. It is all very streamlined and easy on you!
It is always powerful to advocate for Fragile X, both during our own Advocacy Day and in-district with other rare disease communities.
Registration closes July 8, 2022.
We will be providing Fragile X-specific asks via handout as the meetings get closer.