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28 09, 2022

“Wat Up?” and Other Steps to Socialization

By |2023-01-31T12:50:32-05:00Sep 28, 2022|Behavior, Daily Living|Comments Off on “Wat Up?” and Other Steps to Socialization

“Hey” was one of my son Ian’s first words, and what he quickly learned was that whomever he said that to responded — with something. Usually it was with a smile and friendly tone to their voice, and you know how quickly our children pick up on that positive feeling.

24 08, 2022

American Academy of Pediatrics Hosts New Course on Fragile X syndrome

By |2022-09-23T17:12:14-04:00Aug 24, 2022|Blog|Comments Off on American Academy of Pediatrics Hosts New Course on Fragile X syndrome

AAP/CDC course, "Identification, Management, and Caring for Children and Adolescents with Fragile X Syndrome" will be available for pediatricians and other healthcare professionals through August 1, 2025, on the AAP PediaLink platform.

23 06, 2022

The International Fragile X Premutation Registry: Building a Resource for Research and Clinical Trial Readiness

By |2022-08-19T12:35:55-04:00Jun 23, 2022|Blog, Research, Research Results|Comments Off on The International Fragile X Premutation Registry: Building a Resource for Research and Clinical Trial Readiness

The first published publication from the International Fragile X Premutation Registry Advisory Committee. This International Fragile X Premutation Registry is an important first step and can serve as a useful tool for clinicians and researchers in the field.

1 04, 2022

Our Team

By |2023-02-04T13:57:34-05:00Apr 1, 2022|Comments Off on Our Team

Meet Our Team Meet the people behind the the scenes at the National Fragile X Foundation. While we are here to serve all those living with Fragile X, we couldn’t do what [...]

7 01, 2022

Contact Us

By |2022-10-07T11:36:05-04:00Jan 7, 2022|Comments Off on Contact Us

Contact Us If you have questions, need help, or just want to share, we’re here Monday thru Friday, 9 AM to 5 PM ET, with the usual holidays as exceptions. We have a [...]

29 12, 2021

An Introduction to Assessing Children with Fragile X Syndrome

By |2022-01-04T12:19:59-05:00Dec 29, 2021|Comments Off on An Introduction to Assessing Children with Fragile X Syndrome

Consensus of the Fragile X Clinical & Research Consortium An Introduction to Assessing Children with Fragile X Syndrome Reading Time: 55 min.—|—Last Updated: Dec. 2021—|—First Published: June 2011—|—Download PDF Note: There [...]

20 12, 2021

Medications for Individuals with Fragile X Syndrome

By |2023-01-18T10:16:17-05:00Dec 20, 2021|Comments Off on Medications for Individuals with Fragile X Syndrome

Consensus of the Fragile X Clinical & Research Consortium Medications for Individuals with Fragile X Syndrome Reading Time: 190 min.—|—Last Updated: Feb. 2021—|—First Published: 2012—|—Download PDF The following [...]

19 11, 2021

The 17th Biennial NFXF International Fragile X Conference | 2020

By |2021-12-09T11:34:04-05:00Nov 19, 2021|Comments Off on The 17th Biennial NFXF International Fragile X Conference | 2020

The 17th NFXF International Fragile X Virtual Conference May 29–30, June 27, July 22, 2020 This is the archive page for the 2020 17th NFXF International Fragile X Virtual Conference. See the sessions, panels, [...]

12 10, 2021

31 Shareable Fragile X Facts

By |2021-10-27T10:49:26-04:00Oct 12, 2021|Comments Off on 31 Shareable Fragile X Facts

31 Shareable Fragile X Facts Why 31? Because there are 31 days in July, and every July is National Fragile X Awareness Month! So you'll always find at least 31 facts right here (plus [...]

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