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21 09, 2018

Concept and Use of a Sensory Diet

By |2023-06-14T16:17:37-04:00Sep 21, 2018|Behavior|Comments Off on Concept and Use of a Sensory Diet

Leading pediatric occupational therapists, Tracy Stackhouse and Sarah Scharfenaker, provide an overview of the concept and use of sensory diet including a downloadable sensory diet template, and an example of a completed template for a sample patient.

1 06, 2017

Resources

By |2023-04-10T13:50:57-04:00Jun 1, 2017|Comments Off on Resources

Living With Fragile X Resources Fragile X Clinics & IDEA Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may [...]

22 02, 2017

Passion for Community and Support Key to Success for Annual Conference

By |2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|Comments Off on Passion for Community and Support Key to Success for Annual Conference

When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”

18 11, 2016

Fragile X and Hyperarousal Educational Conference

By |2016-11-18T13:15:25-05:00Nov 18, 2016|Central Arkansas, Events|Comments Off on Fragile X and Hyperarousal Educational Conference

On Saturday, October 29th, Fragile X of Central Arkansas hosted renowned speakers and therapists, Tracy Stackhouse and Sarah "Mouse" Scharfenaker for an educational conference, open to all families.

26 10, 2016

You Are Never Too Old to Wear a Pink Tutu . . . and Other Lessons Our Son Has Taught Our Family

By |2023-06-14T16:00:32-04:00Oct 26, 2016|Daily Living, Education|Comments Off on You Are Never Too Old to Wear a Pink Tutu . . . and Other Lessons Our Son Has Taught Our Family

Like many of you, I will always remember the day and time when I received the diagnosis of our son, Ian. Fragile X syndrome – never heard of it. These are the lessons my family has learned since that time.

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