By Tracy Murnan Stackhouse|2023-06-14T16:17:37-04:00Sep 21, 2018|Behavior|
Leading pediatric occupational therapists, Tracy Stackhouse and Sarah Scharfenaker, provide an overview of the concept and use of sensory diet including a downloadable sensory diet template, and an example of a completed template for a sample patient.
By Jayne Dixon Weber|2023-02-02T13:11:14-05:00Oct 24, 2017|Community, Hope & Inspiration, Newly Diagnosed|
Getting a diagnosis is hard. It’s really hard. There has been nothing else like it in my life and I cannot imagine there ever will be. It made me sad … really sad.
By Tracy & Ruth, Developmental FX|2023-03-12T08:48:53-04:00Jun 28, 2017|Adolescents and Adults, Adulthood|
Suggestions from DevelopmentalFX on how to make transitions into the workplace during the high school years more valuable and comfortable for everybody.
By NFXF|2023-04-10T13:50:57-04:00Jun 1, 2017|
Living With Fragile X Resources Fragile X Clinics & IDEA Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may [...]
By Tracy Murnan Stackhouse|2023-06-14T16:13:40-04:00Apr 19, 2017|Behavior, Coffee Talk with Mouse and Tracy, Daily Living|
Mantras, like positive affirmations, really do have power. Mantras are short, positive, instructive statements full of action words. We use them to quiet the mind and focus on thinking and action.
By NFXF|2023-06-14T16:16:16-04:00Mar 22, 2017|Behavior, Coffee Talk with Mouse and Tracy|
Let's discuss verbal perseveration (VP), a very typical and pervasive aspect of language in Fragile X syndrome. Does VP interfere with daily living and activities? You bet your boots it can!
By NFXF|2017-02-22T09:00:20-05:00Feb 22, 2017|Central Connecticut, Community Support Network|
When Tammy and Andy Selinger received their daughter’s diagnosis in 1994, even their doctor was unsure what it meant. He just told them the test was positive for Fragile X. One of their first calls was to the National Fragile X Foundation, where they were connected to a long-time volunteer, Margaret Israel, who spent more than an hour and half on the phone with them. The support they found during such a critical time motivated them to get involved because as Andy says, “Nobody should get diagnosed without someone to talk to.”
By NFXF|2016-11-18T13:15:25-05:00Nov 18, 2016|Central Arkansas, Events|
On Saturday, October 29th, Fragile X of Central Arkansas hosted renowned speakers and therapists, Tracy Stackhouse and Sarah "Mouse" Scharfenaker for an educational conference, open to all families.
By Jayne Dixon Weber|2023-06-14T16:00:32-04:00Oct 26, 2016|Daily Living, Education|
Like many of you, I will always remember the day and time when I received the diagnosis of our son, Ian. Fragile X syndrome – never heard of it. These are the lessons my family has learned since that time.
By Tracy Murnan Stackhouse|2023-02-22T11:10:18-05:00Sep 3, 2015|Autism, Treatment and Intervention|
Fragile X experts Sarah K. Scharfenaker and Tracy Stackhouse discuss how to adapt autism interventions for those with Fragile X syndrome.