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1 06, 2017


By |2020-04-14T14:37:11-04:00Jun 1, 2017|Comments Off on Resources

Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may address the symptoms of FXS, while new medications are coming on »

24 01, 2020

International Fragile X Conference

By |2020-08-05T19:01:17-04:00Jan 24, 2020|Comments Off on International Fragile X Conference

NFXF International Fragile X Conference The NFXF International Fragile X Conference is the largest of its kind in the world. This biennial event brings professionals, caregivers, self-advocates, and family members together—a truly unique »

23 05, 2017


By |2020-09-18T09:53:32-04:00May 23, 2017|Comments Off on Webinars

We offer free webinars to address some of the most frequently asked questions about Fragile X. Experts offer tips and other information you need to know. Family members, caregivers, and professionals are »

2 01, 2012

Sensory Diet

By |2018-10-03T13:08:25-04:00Jan 2, 2012|0 Comments

A sensory diet is an occupational therapy intervention strategy devised to attain and maintain appropriate arousal states throughout each day. A sensory diet consists of a carefully planned program of specific sensory-motor activities that is scheduled according to each child's individual needs and each families schedule and resources. A sensory diet can help maintain an age appropriate level of attention for optimal function to reduce sensory defensiveness.

20 11, 2015

Let's Talk FXS, Autism & Behavior with Tracy & Mouse

By |2015-11-20T14:01:36-05:00Nov 20, 2015|Webinar|Comments Off on Let's Talk FXS, Autism & Behavior with Tracy & Mouse

Our favorite duo, Mouse & Tracy of Developmental FX, join us to discuss Fragile X, autism and behavior. As always, they provided insight and wonderful advice to our audience - and their presence is always a delight!

29 07, 2013

My Child Won’t Answer Questions!

By |2020-07-04T14:27:50-04:00Jul 29, 2013|Coffee Talk with Mouse and Tracy, Treatment and Intervention|Comments Off on My Child Won’t Answer Questions!

Direct questions are typically the way we try to engage people in conversation. For children with FXS, we need to learn other strategies. It is critical to understand why it is so difficult for children with FXS to understand and respond to these questions, before we get to the how of getting answers.

8 09, 2017

Sensory Diet

By |2017-09-19T10:56:35-04:00Sep 8, 2017|Treatment and Intervention|Comments Off on Sensory Diet

A variety of therapies can be helpful in addressing many of the issues seen in Fragile X syndrome. Because the impact of Fragile X is so varied, it is important to do a careful evaluation »

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