This is Sam Jacob, he is my co-worker at at the National Fragile X Foundation, and he is one of the coolest dudes I know. No, scratch that. He is THE coolest dude I know. [...]

Sam Blackwood is a wonderful 2 year old boy who tries hard to please and just as quickly test us with his limits and boundaries. He loves anything that moves and likes to be in [...]

Logan is almost 3 years old, and was diagnosed 1 year ago. He is the sweetest, happiest little guy you could ever meet. He loves to smile and laugh, loves watching Yo Gabba Gabba, swinging, [...]

Alicia is 10 and Lucas is 5. Both full mutation. Both kids were diagnosed a few months ago. It was a hard pill to swallow but we were so glad to finally have a diagnosis. [...]

My husband and I were shocked to learn at my nineteen week ultra sound that we were having twin boys. I gave birth to two seven pound babies on October 21, 2008, named Alexander and [...]

I think it is important for everyone to be the best person that they can be. It doesn't matter what your abilities are. Every person in this world has a place in it, and can [...]

My son Nathaniel (5) has Fragile X. 

Daniel Steiger is 25. He has attended a day-program since 'graduating' in 2005. Daniel also volunteers with local Sheriff's Departments to help paint over graffiti. When asked what he wants for his birthday or Christmas, all Daniel [...]

I have a brother named Matt, he is 10 years old. We like to "camp"(sleep in each others room) and ride bikes together. When I get older I want to become a teacher who helps [...]

Our oldest son Matt(10) was diagnosed at birth, something we thought we had avoided through some advanced reproductive technology. After the initial shock, we decided we were chosen for our sweet boy. He had the [...]

Benjamen is only 21 months but showes me no matter what he tryes to do he will keep tring till he gets it done. He is so special. He does not let anything stand in [...]

Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]