Our Amazing Children
Alicia is 10 and Lucas is 5. Both full mutation. Both kids were diagnosed a few months ago. It was a hard pill to swallow but we were so glad to finally have a diagnosis. [...]
A Double Blessing!
My husband and I were shocked to learn at my nineteen week ultra sound that we were having twin boys. I gave birth to two seven pound babies on October 21, 2008, named Alexander and [...]
Being the best person you can be.
I think it is important for everyone to be the best person that they can be. It doesn't matter what your abilities are. Every person in this world has a place in it, and can [...]
Nathaniel Snyder
My son Nathaniel (5) has Fragile X.
Destination: DISNEYLAND!
Daniel Steiger is 25. He has attended a day-program since 'graduating' in 2005. Daniel also volunteers with local Sheriff's Departments to help paint over graffiti. When asked what he wants for his birthday or Christmas, all Daniel [...]
My Awesome Brother
I have a brother named Matt, he is 10 years old. We like to "camp"(sleep in each others room) and ride bikes together. When I get older I want to become a teacher who helps [...]
Fragile What?
Our oldest son Matt(10) was diagnosed at birth, something we thought we had avoided through some advanced reproductive technology. After the initial shock, we decided we were chosen for our sweet boy. He had the [...]
Gramma's FX Baby
Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]
Gramma’s FX Baby
Eddie is my 2nd grandson, i always knew he'd be a very special little boy! We knew something was wrong with him but didnt know what. He went under multiple tests, untill the verdict came [...]
Our Blessing
This is Caden. Or to us "Little Bit". Caden may be little and cute but he sure leaves a huge impact on people. Words can't explain what a blessing Caden is to us. God has [...]
Cheech & Chong
Zack and AJ Korman are identical twins with a variety of silly nicknames that fit their personalities. They were diagnosed when they were 14 month old babies; now they are 6 years old and are full [...]